1. Expert Q&A: Protecting a person with dementia from financial abuse - Weds 26 June, 3:30-4:30 pm

    Financial abuse can have serious consequences for a person with dementia. Find out how to protect a person with dementia from financial abuse.

    Sam, our Knowledge Officer (Legal and Welfare Rights) is our expert on this topic. She will be here to answer your questions on Wednesday 26 June between 3:30 - 4:30 pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

Help required from willing participants

Discussion in 'Researchers, students and professionals' started by witchkat35, Jan 17, 2008.

  1. witchkat35

    witchkat35 Registered User

    Jan 17, 2008
    2
    hertford
    Hi i'm new here at the forum i am requiring some help from families of parents/partners living with dementia who are willing to tell me their personal accounts of support from diagnosis of dementia and decisions that have been made by yourselves.
    Please let me explain, I am currently studying a year long dementia course I am a unit manager in a residential home, I am responsible for our dementia unit and have 16 residents living with dementia.
    My assignment is to work with families to understand the feelings and emotions they felt from diagnosis, decision making, support ( if any ) how you went about any decisions made, I have personal experience as both my grandparents lived with dementia one was cared for at home and the surviving spouse ended in a care environment ,I lived with my fathers decisions and accounts of support he and his brother had (none), I would like to set up a family support group at our home but am unsure of the response as it is such a delicate personal thing you are all living with.
    I would be grateful for ideas, accounts feelings and emotions but I am most certainly understand if i have no response as it is such a huge thing I am asking of you.

    Many thanks for reading this
    Witchkat35
     
  2. Kayla

    Kayla Registered User

    May 14, 2006
    621
    Kent
    Our support from the Social Services and the Hospital was non-existent.
    The staff at the Care Home and Nursing Home were caring and supportive.
    The family GP was useless and didn't seem to know anything about Vascular Dementia.
    Talking Point is the only place where I have had any useful information and help.

    Kayla
     
  3. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    Whitchkat, I have moved your thread to a more appropiate section. Hope this helps.
     
  4. lesmisralbles

    lesmisralbles Account Closed

    Nov 23, 2007
    5,543
    Willing to help

    Hi
    My husband has Parkinsons, has had for 12 plus years that we know of. And now, dementia, Lewy bodies ? they do not know. I do not think it is Lewy bodies. And there is no test for either
    Please contact me via private message, if you wish to talk.
    Barb
     
  5. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    Hi witchkat

    My husband has had PPA for seven and a half years. He was doing well until lasy=t August, when a severe UTI knocked him for six. He's now in the EMI section od a care home.

    You can PM me too if my story is of interest.
     
  6. snooky

    snooky Registered User

    May 12, 2007
    104
    devon
    Hi,
    My Dad has had AD for about 7 years now and is quite poorly at the moment. Again, I would be happy to help, if you want to pm me no problem.
    Snooky
     

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