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Feeling confused over my dad condition.

Just Jane

Registered User
Jun 29, 2020
My father was told last Tuesday he has dementia with Lewy Bodies and all of a sudden he can not walk at all and his hands are like claws, he can't grip. he is in pads as he can't get to the toilet, this has happen all of a sudden after he was told he has Dementia Lewy Bodies. We have still not had no diagnose letter from the doctor at the hospital.

The doctor did not give us any further information on it and said go on google, he not even been given any medication at all,

He has gone from walking, to not being able to walk, he said he can't move his legs because they feel like lead and can't grip.

Is the normal process of this type of dementia with Lewy Bodies, go from walking to not being able to walk the next and legs feeling like lead and can't use hands to grip.

He has only had one CT scan, which he had in April, and just been told got dementia with Lewy bodies with one scan and no other test's part from the cognitive test with the clock.

I feel like sometimes they have not look at my father proper, i thought he would have more test like scans like MRI ect.



Registered User
Feb 25, 2014
South coast
When there is a sudden change like this I always think - infection!
Has he been tested for a UTI? When my OH got a UTI he too was completely unable to walk, or even sit upright.


Registered User
Oct 21, 2019
They have obviously detected the Lewy Bodies present. They would not have made the diagnoses otherwise. I suspect the reason they have not done a MRI is if they are confident of their diagnoses what would it achieve?
The fact that someone has Lewy Body dementia does not mean that they can’t suffer from other ailments at the same time.
example stroke or more likely UTI so please get him checked out.
Keep reading the posts on the site as Lewy Body dementia is discussed quite often.


Volunteer Moderator
Dec 15, 2012
hi @Just Jane
sorry that you have been left with little information

it can be one of the symptoms (shared with Parkinson's) of LBD that the person 'freezes' as you describe, though I don't know how suddenly this can come on .... I do agree that it's worth checking for a UTI or any other infection as these can play havoc with the system of those with dementia

you may find it helpful to contact Admiral Nurses, for someone to actually talk with, as they are there to support carers

and this site may also be helpful


Volunteer Host
Apr 1, 2016
Welcome to Dementia Talking Point @Just Jane

I agree with the others that it’s probably an infection that’s caused the sudden downturn so I hope his GP can offer something to clear it up quickly if that’s the case.

I was told very little about what to expect from the medical profession but got a lot of information about what to expect and how to deal with it from the posters on this forum so you’ve come to the right place. Do let us know how you get on.