- Nov 13, 2019
Thank you for your reply. We do have a holiday planned for May. Last year we didn’t go at all. The denial is making an already difficult situation impossible. Now we’ve had the response from the SALT team , I’m hoping the doctor will follow the recommendations. The way I see this is that because my mother is at home, we are left to our own devices . I realise in any care facility or hospital, nutrition would be phased out because of the extreme risk of aspiration. Seems like when you are dealing with in your own home, nobody will actually take responsibility for managing this known risk. I’m terrified that one day I’ll be there and my mother’s heart will just give up. All this choking, to the degree where she’s purple in the face and spending at least half hour to an hour crying out afterwards is the most horrific thing I’ve ever seen.Sounds as if GP needs more input all round.
I know how difficult this is to get. I often think I am expected to have a nursing degree. Your dad is probably in deep denial. Try and get a break if possible. X