Thanks Peggy. It's very helpful to have this important link repeated. Also every post bumps the thread and we really want it to be seen by any TP member who might be dealing with CHC issues.
Post #11 on this thread is about a successful CHC process and it's always cheering and can be helpful to hear about successes despite setbacks.
Hi, I wondered if anyone could offer any advice please. My mother has been in and out of hospital since October. Initially heart failure and fluid on the lungs, then went home but unfortunately broke her hip. Back in hospital for an operation then sent to a smaller hospital for rehabilitation but whilst there , and despite warning staff on numerous occasions, she fell and broke the same leg – we have made a formal complaint, but this is yet to be dealt with. Mum back in hospital just before Christmas for another operation and has been in hospital ever since. Now bedridden, doubly incontinent and although not formally diagnosed, we’ve been told she has vascular dementia. We have also been told that she needs 24 hour nursing care.
She has been on the same ward since December but 3 days ago was moved to another ward as they said it would be in her best interests. We had an assessment meeting Friday with CHC nurse and social worker and mum scored one - severe, three – high, three – moderate, and SW and family thought high on another two sections but CHC nurse thought moderate. The CHC nurse asked a nurse to come in from the new ward for his opinion – he had only met mum that morning! We asked why a nurse was not asked from the ward mum had been on for over 2 months and were told that there was no one available. CHC and SW have agreed and are making a recommendation that mum has CHC full contribution and CHC will write a report to submit to CCG panel.
However CHC nurse has warned us that the CCG might not agree with it, as she believes there is not enough documentary evidence! CHC nurse said that the previous ward should have kept more detailed notes. Needless to say we are furious – can we complain about this lack of note keeping? Also can we ask CHC nurse for a copy of the report that she submits to CCG? Many thanks for any help or advice you can give us.
Many thanks Stanleypj, sorry if I didn't explain myself properly. Three weeks ago we had a meeting with OT, nurse, physio and they went through checklist with us and my mum scored high enough to have full assessment meeting with CHC nurse and SW which took place last Friday. They have recommended full contribution for CHC, so CHC nurse now preparing report to submit to CCG. We were just disappointed when CHC nurse mentioned about this lack of detailed note keeping by mum's previous ward, which she was on for nearly 2 months, and are worried that our application may fail due to this. Mum has an EPA but not a LPA for Health and Welfare. Will just have to keep everything crossed until we hear from CCG, CHC nurse has said we should hear in 2 weeks - is this usual timeframe in your experience? Thank you
Best of luck Old Beauty. I'm out of the discussion/battle as my MIL had a downturn last week and is now on end of life care.
Thanks for the clarification Oldbeauty. I understand now. It's a great pity that the the nurse mentioned her doubts to you. If the assessment meeting has recommended CHC then it usually happens, as I understand it. And if they do quibble over the hospital's lack of professionalism in not recording adequately it should be clear that that doesn't alter the facts. The two week wait probably just means that that's when they next meet.
Good luck and keep us posted.