Oh you poor soul having to go through the same rigmarole with SS again, I feel guilty about moaning when their are so many more people worse off than me. I'm off to my MRI scan now to check on my alien ! What my son called my brain tumour when I was diagnosed 23 yrs ago. I'm always surprised when they can find a brain lol. Feel like it's been fried over the years through stress and depression. Guess our bodies can cope with a lot more than we give it credit for. ? Your husband and mine are right in their description of the S.S. Same as my description of my physiotherapists as physio terrorists lol. Stay strong and do what you know is best for your family.
At the end of my tether...
- Thread starter Bunpoots
- Start date
Oh you poor soul having to go through the same rigmarole with SS again, I feel guilty about moaning when their are so many more people worse off than me. I'm off to my MRI scan now to check on my alien ! What my son called my brain tumour when I was diagnosed 23 yrs ago. I'm always surprised when they can find a brain lol. Feel like it's been fried over the years through stress and depression. Guess our bodies can cope with a lot more than we give it credit for. ? Your husband and mine are right in their description of the S.S. Same as my description of my physiotherapists as physio terrorists lol. Stay strong and do what you know is best for your family.
Oh BLIP poor you - By the time MIL came to us she was obviously incontinent so did not have to go through the stage of going from continent to incontinent - really not looking forward to that bit with my OH. He has just started to do things like going for a wee in our en-suite shower and bath - not sure if that is when he is going to bed or after he has fallen asleep and then goes during the night but before I have come up. Either way, he also had indigestion after he came back from the day centre yesterday and when I made him have a shower this am it was clear by the state of his underpants and the bed that cleaning himself had not been done very well. Any tips on what I might do or how to handle it? Guess it is another chapter on care I will need to brush up on!
My OH doesn't have toilet problems, although a few months ago he did wee in the bath, but of course it wasn't him! he also had a wee in the spare bedroom and blamed the dog( no it wasn't) and one accident in bed luckily he got up before it was too bad, but that wasn't him either. Thank goodness he has been ok since, but for now long. Lx
Not heard anything directly from the hospital but I phoned PALS this morning and the lady I spoke to has told me that I need to speak to the nurse in charge about dad. Apparently they are having trouble stabilising his blood pressure. They changed his meds so now it's sometimes too low (it was very high) so although they have given him some physio they haven't managed everyday.
Isn't it amazing what happens if you put your foot down?
Re care home. Sis loves it too so I'm phoning tomorrow to let the manager know we would like a place for dad. They start on a six week trial but seldom have people who's needs they can't manage. And if that did happen they would help find a suitable placement.
The home is owned by a retired consultant ( I think he was my mum's) who specialised in elderly mental health. The staff I've spoken to certainly seem to know their stuff!!
Isn't it amazing what happens if you put your foot down?
Re care home. Sis loves it too so I'm phoning tomorrow to let the manager know we would like a place for dad. They start on a six week trial but seldom have people who's needs they can't manage. And if that did happen they would help find a suitable placement.
The home is owned by a retired consultant ( I think he was my mum's) who specialised in elderly mental health. The staff I've spoken to certainly seem to know their stuff!!
The home sounds amazing and I'm thrilled to hear such good news.
I am, however, sorry to hear about the BP issues. Blood pressure can be tricky to regulate in a dementia patient, if my mother's neurologist is to be believed. I hope it can be sorted; it can't be making him feel better.
I am, however, sorry to hear about the BP issues. Blood pressure can be tricky to regulate in a dementia patient, if my mother's neurologist is to be believed. I hope it can be sorted; it can't be making him feel better.
That home seems to be ticking all the boxes Bunpoots 
Have you asked for them to do an assessment on your dad?
Have you asked for them to do an assessment on your dad?
That home seems to be ticking all the boxes Bunpoots
Have you asked for them to do an assessment on your dad?
I'm going to phone the manager today
Nothing much to report. Dad's still in the acute hospital where they are trying to sort out his meds. I wanted to talk to the Doctor but s/he was nowhere to be found. I'm concerned that his Donepezil has been stopped, but not sure that it really agreed with him anyway. Nurse seemed to think it was probably due to interactions without other drugs.
His blood pressure was stable yesterday, it had been dropping when he stood up, and they had him out of bed. How could they send him home with "nothing medically wrong with him"
He's on the pathway I expected him to go on in the first place now. So after they've got his blood pressure controlled he'll be sent to the community hospital for rehab and social services will assess his needs.
I phoned the chosen care home manager and she'll assess him at this point to see if she can offer him a place.
Dad's not wearing his top teeth so sis told him he looks like a muppet without them... We didn't get the usual quip in reply
His blood pressure was stable yesterday, it had been dropping when he stood up, and they had him out of bed. How could they send him home with "nothing medically wrong with him"
He's on the pathway I expected him to go on in the first place now. So after they've got his blood pressure controlled he'll be sent to the community hospital for rehab and social services will assess his needs.
I phoned the chosen care home manager and she'll assess him at this point to see if she can offer him a place.
Dad's not wearing his top teeth so sis told him he looks like a muppet without them
... We didn't get the usual quip in reply So pleased for you Bunpoots. Things seem to be moving in the right direction for you and dad. I hope when he goes to the care home that he settles in for your peace of mind. My M.I.L. was confused to start with but the staff say she's settled as though she's always lived there. Good to know even though she was sent there against our wishes. Just wish we could visit ! The manager is trying to get hold of the SW to ask if we can visit. After all we visited most days in hospital so can't see the difference between that and visiting now.
What a stroke of luck the home being owned by someone who is well versed in the complex area of dementia. And that the staff obviously know their stuff too. Sounds like you've found the ideal place for dad and for you and your sis too. Hope it's dads new forever home x
After everything I've read about PWD being extremely unhappy and confused in hospital my dad, at the moment seems totally unfazed by his situation. I suspect this is partly because he's sleeping a lot of the time. I'm not sure he knows where he is, but he often didn't know where he was when he was home.
He's being dressed and sat up in the morning, sometimes in a chair but, if he looks as though he's going to slide himself out of the chair, he's sat up in the bed. Baby steps and I'm not sure if much improvement is going to happen.
He's feeding himself now - for the last week or so he hasn't been interested in food - so that's an improvement. I don't think he's standing yet, let alone "walking independently" as they claimed on his last discharge..
I can't fault his treatment now. He looks clean and well cared for. But where would he be if he'd had no-one to fight his corner?
He's being dressed and sat up in the morning, sometimes in a chair but, if he looks as though he's going to slide himself out of the chair, he's sat up in the bed. Baby steps and I'm not sure if much improvement is going to happen.
He's feeding himself now - for the last week or so he hasn't been interested in food - so that's an improvement. I don't think he's standing yet, let alone "walking independently" as they claimed on his last discharge..
I can't fault his treatment now. He looks clean and well cared for. But where would he be if he'd had no-one to fight his corner?
He'll be discharged from the acute hospital to the community (recovery and rehab) hospital. After that he'll go to the care home for a weeks respite with a view to keeping him there. It'll give us chance to get him properly assessed to see if a return to his own home would be possible. Somehow I doubt it will. I was already thinking that care home was on the horizon before this last downturn and I doubt he'll get back to where he was (just) safe at home.
I'm not saying that to the hospital staff though. I want him as good as possible wherever he ends up. So, officially, we're aiming for home..
I'm not saying that to the hospital staff though. I want him as good as possible wherever he ends up. So, officially, we're aiming for home..
Excellent plan @Bunpoots
I'm sure it's right to keep the options open for your dad's sake, and as you say, you want the best recovery and treatment wherever he is. Well done and all the best Lindy xx
