Saturday 13 July
OH won't be shipped off anywhere at the weekend. Discharge coordinator rang yesterday evening to confirm this. She's lovely. I just find living in Dementialimboland does my head in, as the saying goes. I thrive on routine, procedure and protocol, and trying to find out what was or is protocol, invention or illegal about OH's care was or is not remotely entertaining. Most male medical staff seem to get that. Patronising, empty reassurances, especially from admin, cleaning, catering and security staff doesn't cut it. The health care assistants are not allowed to comment. The nurses don't have time, or so it seems.
Will visit OH before lunch today. Works best. We're both less tired, there's less of a hole punched through the day, and he has lunch to distract him as I leave. Newspaper, fruit squash.....Not visiting Sunday. I hate this. Neither of us is living.
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Not taking OH any toiletries. He doesn't seem to have missed them. Saves the anguish and expense of losing them on daily basis. Not sustainable when his preferred razor costs a tenner, never mind the blades. Someone is shaving him, and he is being showered. His refusal to shower unprompted is only because he has always bathed. His hair looks combed and still short enough. He needs the dentist for his broken tooth. All I can do for dental hygiene is make him drink a lot. Dental appointment keeps being postponed. Waste of a dental plan but no NHS locally
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So what can I do with myself once OH is locked away? I used to think I'd volunteer with animals but there's nowhere convenient locally
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At this rate I'm going to end up fat, miserable, drunk, broke and alone. Trying to be positive but OH will be locked away until brittle diabetes or frustration kill him. So I bought him more jogging pants and trainers.
So conflicted, as the Americans say. I am just not convinced that living longer is in OH's best interests. The man I married would be horrified at the fate he's having inflicted on him
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3pm
Still trying my best..... Bill very very shakey, could not get dressed today. Parkinsons meds need to be delivered promptly and regularly. Noticed on first visit that 1pm dose not on chart over bed, and 10am put as 11am instead. Queried it today, as would mean wrong dosage for the past two weeks...... Yup, unfortunately I'm right again..... Chart altered, 10am dose given at 10.30am...... After the Best Interests Meeting my concerns are being taken seriously, as I've obviously done my research.
Still not convinced that rotting in a nursing home just to take Parkinsons meds and insulin jabs is the best outcome
Taken 2.5 hours to get back home due to busses missing.... Grrrrr
Sister has sent my ID back special delivery. Better late than never 🐌
And I got a tax rebate😁
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National Specialty Advisor for Diabetes with NHS England has replied very promptly and sympathetically, which is typical. Gotta love the guy! He has suggested I ask the diabetes team for a full review......I will if I can get hold of them... No names, emails or direct phone numbers. I can email the National Specialty Advisor for Diabetes with NHS England and get an immediate reply on a Saturday, but have no way of contacting the local team direct on weekdays, let alone weekends. Mountains were moved in many directions last time I contacted the Prof, and not by me..... 🦶⛰️