Agreed to see the doctor again.

RM3

Registered User
Feb 4, 2024
688
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when i try and assemble something, , i have rules, 1, keep his distance, 2 no advice, 3 no interfering. i can see him itching to do all three but i cant do it, gets frustrated and loses his temper so if he wants something doing, he leaves it to me.
Hi @jennifer1967 - I think they are sensible rules. Even though we are still early on, I am learning that this sometimes is best all round. x
 

RM3

Registered User
Feb 4, 2024
688
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I really hope you get some answers on Tuesday the waiting is a nightmare My husband has trouble with telling the time it’s so upsetting We were trying to put a radiator cover together yesterday it was. Nightmare My husband would usually of done it in no time but we couldn’t do it together I lost my temper which I regretted immediately Most probably best you speak to the memory clinic as he may struggle I’m sure he will accept a diagnosis either way sending you a big hug
Hi Bev. I hope you are well?
I am definitely learning from the forum, that further down the line, my patience would definitely be tested. No matter how much we love them, it still can not be easy to cope with the situations that we share on here. Sending hugs back x
 

maggie6445

Registered User
Dec 29, 2023
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The talking clock sounds like a good idea. I see the Alzheimer’s Society shop sells them.

[/QUOTE
yes the watches are there. They weren't in stock when I bought OH his . Looks as if there's a few to choose from now. X
 

Bevhar

Registered User
Mar 23, 2023
191
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Hi Bev. I hope you are well?
I am definitely learning from the forum, that further down the line, my patience would definitely be tested. No matter how much we love them, it still can not be easy to cope with the situations that we share on here. Sending hugs back x
I can’t imagine how awful it would be if you weren’t happy with your partner I’m sure you will deal with whatever the outcome of the tests are and always here for a chat xx
 

Bevhar

Registered User
Mar 23, 2023
191
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when i try and assemble something, , i have rules, 1, keep his distance, 2 no advice, 3 no interfering. i can see him itching to do all three but i cant do it, gets frustrated and loses his temper so if he wants something doing, he leaves it to me.
Our daughter is coming over to help bless her it’s sad because my other half was always brilliant at DIY x
@Bevhar and @RM3 i bought my OH a speaking watch. I bought from the website for the blind but they are available ,if in stock ,from dementia charities on line shops.

My oh used to like showing small children his talking watch which prompted me to purchase his ' I have dementia.please be patient ' badges as I felt he might be thought a safeguarding risk for children!

Parents noticed the badge and were, without exception, really kind and lovely to him. He never went out alone as I'd retired and we were,still are, a very much do things together couple. ( It's why I wanted him at the wedding with me but that's not practical🙁) xx
This is so lovely I love that you are still a very together couple You always make me feel better about things We need more positive people with their stories xx
 

maggie6445

Registered User
Dec 29, 2023
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Our daughter is coming over to help bless her it’s sad because my other half was always brilliant at DIY x

This is so lovely I love that you are still a very together couple You always make me feel better about things We need more positive people with their stories xx
Thank you. I try to be positive,doesn't always work 🤣
 

maggie6445

Registered User
Dec 29, 2023
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I bought The Banjoman a talking watch from RNIB (no VAT) and as far as I know he used it OK.
Yes the one we got was from the RNIB as well. The only thing we found was the face was plastic and the silver finish faded over time. The ones on the Alzheimer's site may be stainless steel ,if so might be better

My OH no longer wears his as he has no concept of time now.
 

RM3

Registered User
Feb 4, 2024
688
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Yes the one we got was from the RNIB as well. The only thing we found was the face was plastic and the silver finish faded over time. The ones on the Alzheimer's site may be stainless steel ,if so might be better

My OH no longer wears his as he has no concept of time now.
Hi @Banjomansmate - thank you. I have had a look at the watches online from RNIB. There are some nice looking ones. I will definitely keep these in mind. Hope you’re well and thanks again x
 

maggie6445

Registered User
Dec 29, 2023
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I've just looked at the RNIB site. The watch my oh has isn't there , The one I looked at is now a chrome face so maybe they had complaints about the ' silver' rubbing off the plastic one we had.
 

RM3

Registered User
Feb 4, 2024
688
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Hi all. Sorry but this is my only place to come to at the moment.
I’m sat in work just trying to hold it together.
We have no diagnosis as yet but the memory clinic phoned me earlier this morning.
They have some concerns that there is something wrong. They are ruling out any tumors, depression, anxiety or stress.
They are unable to give a diagnosis, without some further testing.
They said that we will get an appointment with a specialist in about a months time and they will either give a diagnosis, or potentially, request a PET Scan.
I just feel so alone and so sad.
My mum is the person I would have called straight away to talk about this 😢.
I want to shield my (grown up) daughters at the moment, until we know for sure.
My husband hasn’t even asked about this today, so I will probably just not say too much and let him know that there will be more appointments.
My life feels to have been shaken up so badly this past 9 months.
I am thankful to have the forum to turn to.
I just wish that I could get up from my desk and walk away x
 

Izzy

Volunteer Moderator
Aug 31, 2003
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I’m so sorry you’re feeling so bad @RM3. It’s not surprising though. You must be in a turmoil.

I’m glad you’ve come here to share. You know you will always have support and understanding here.
 

Bevhar

Registered User
Mar 23, 2023
191
0
Hi all. Sorry but this is my only place to come to at the moment.
I’m sat in work just trying to hold it together.
We have no diagnosis as yet but the memory clinic phoned me earlier this morning.
They have some concerns that there is something wrong. They are ruling out any tumors, depression, anxiety or stress.
They are unable to give a diagnosis, without some further testing.
They said that we will get an appointment with a specialist in about a months time and they will either give a diagnosis, or potentially, request a PET Scan.
I just feel so alone and so sad.
My mum is the person I would have called straight away to talk about this 😢.
I want to shield my (grown up) daughters at the moment, until we know for sure.
My husband hasn’t even asked about this today, so I will probably just not say too much and let him know that there will be more appointments.
My life feels to have been shaken up so badly this past 9 months.
I am thankful to have the forum to turn to.
I just wish that I could get up from my desk and walk away x
I’m so sorry Rachel my husband had to have
another scan to confirm his diagnosis I understand how you feel about wanting to talk to your Mum though it’s many years since I lost my Mum I felt just the same It’s hard not to have someone to talk to I did have my daughters as the oldest was the one that brought it to my attention Some days I would just love to run away as it’s a very different life But my husband is still him just very muddled an forgetful I would speak to the Admiral nurses they are amazing Also look into groups you can go to I go to a carers group which helps so much I don’t feel quite so alone We went to the Alzheimer’s group together yesterday We had a brilliant group entertaining us I felt better after a rather stressful weekend Always here for a chat sending a gentle hug xx
 

RM3

Registered User
Feb 4, 2024
688
0
I’m so sorry Rachel my husband had to have
another scan to confirm his diagnosis I understand how you feel about wanting to talk to your Mum though it’s many years since I lost my Mum I felt just the same It’s hard not to have someone to talk to I did have my daughters as the oldest was the one that brought it to my attention Some days I would just love to run away as it’s a very different life But my husband is still him just very muddled an forgetful I would speak to the Admiral nurses they are amazing Also look into groups you can go to I go to a carers group which helps so much I don’t feel quite so alone We went to the Alzheimer’s group together yesterday We had a brilliant group entertaining us I felt better after a rather stressful weekend Always here for a chat sending a gentle hug xx
Ah - thank you so much Bev. It helps so much because we all understand.
So many things going on in my head. I am losing hope now and feel that a diagnosis is heading our way.
I am missing my mum so much.
Thank you for your words and the hug. Hugs back to you xxx
 

jennifer1967

Registered User
Mar 15, 2020
25,022
0
Southampton
oh @RM3 its the waiting and not getting clear answers thats the worse. you sych yourself up with whatever diagnosis and drop like a stone when not what you expected. hang on in there and get the scan done. keep talking and know that we are with you.
 

RM3

Registered User
Feb 4, 2024
688
0
oh @RM3 its the waiting and not getting clear answers thats the worse. you sych yourself up with whatever diagnosis and drop like a stone when not what you expected. hang on in there and get the scan done. keep talking and know that we are with you.
Thank you so much @jennifer1967. That is just how it feels. I just want to know what we are facing.
Thank you for your support x
 

RoyalOilfield

New member
Jun 28, 2024
7
0
Rant away! There is obviously something going wrong somewhere !
I think a good rant is a good thing! My mother in law used to tell me she could scream (she never knew why) I used to respond with "so could I, should we scream together?" She used to smile, in a resigned way, and neither of us screamed. (she's become noise sensitive, and it'd just add to the problems...)

And a rant here may just elicit a good (useful) response from someone with a similar, but earlier experience...