My husband and I have organised live-in care for an elderly friend. It is arranged through an agency and so the agency has to find carers to cover the regular carer’s breaks and holidays. The agency employs the carers and so we don’t have to deal with tax, NI, pensions etc.
When the costs of running the house and the carers’ subsistence allowance are taken into account it works out more expensive than the very expensive care home that our friend stayed in temporarily. If you employ/engage carers directly and don’t need relief carers to cover the carer’s breaks and holidays that should reduce the overall cost but there’s more responsibility and more for you to do.
With care at home there is still the house to run in terms of repairs, maintenance, gardening etc. The carer can give the tradesmen / gardener access but you will still need to arrange and direct the work and of course arrange payment.
Live-in care has other limitations. In particular, the carer needs to be able to get a reasonable night’s sleep with not more than a couple of interruptions at night. If the client won’t go to bed at a reasonable hour / gets up repeatedly at night / wanders at night then the standard live-in care package won’t cover that and a waking night carer would also need to be engaged which would make the care package extremely expensive. I don’t think that live-in care would work with a PWD who has very challenging behaviour.
We have found live-in care to work fairly well (so far) but it has involved quite a lot of input from me. Whilst our friend is obviously our priority we are responsive to any issues raised by the carers and the agency.