I'm hopeful I'll start seeing some improvement, fingers crossed!That sounds like some positive steps towards getting things sorted for you @~Raine.
I'm hopeful I'll start seeing some improvement, fingers crossed!That sounds like some positive steps towards getting things sorted for you @~Raine.
I'm hoping I'll start seeing some improvement soon, the memory test was reassuring at least. Progress!It may not feel like it, but that does at least sound hopeful that you’ve moved away from a dementia diagnosis, whilst being on the right track to see the correct specialist next.
I appreciate everyone's support, it really helps to have a safe place to talk about things. ^^ Thank you, I tried my best to listen to her suggestions and try anything she had in mind. I'm blessed to have a kind doctor. She even words things in her notes to where it'll have a higher chance of being accepted by my stubborn insurance, lol.Well done @~Raine for working through your appointment with your Dr so positively. Together you have made some good progress and working towards your next steps. You make very good notes and observations which you can refer to when you next see your mental health specialists . Thanks for posting and updating us.
I'm unable to drive and only have my permit, so I wouldn't be able to take myself unfortunately.Oh dear , ~Raine that’s a disappointment for you. But I am sure the distance can be overcome. Is this other neuropsych the nearest to you that accepts your insurance? What are the barriers to you travelling there? Do you drive, or is there a train or bus? Can you manage alone or will a family member or friend be able to take you? I don’t know about health insurance in your country, but is there any help with transport costs due to the distance involved? Have a think and a few deep breaths!
Yeah, I'm in the US unfortunately, lol. It's alright, I'm getting things sorted for now at least.I take it you're posting from outside the UK, so not covered by the National Health Service.
We might moan about the state the NHS is in but having to deal with insurance companies...what an absolute nightmare for you at a time like this, all you don't need. K
Oh God. I'm also going through the same yet I'm a dimentia patient (mum)carerer. I'm so in denial but many have noticed. I go to the grocery , forget the keys there. Go back looking for them, find them but forget them again. So embarrassing. Also a neighbor talks to me seems I've never seen them in my life yet strangers look so familiar to me. I can't spell words correctly, I can't remember if I fed mum or not or if I gave her medication. I notice I'm nolonger meticulous in the house, neither I'm I taking care of myself as I used to. No more good grooming. As a Kenyan not sure where to get diagnosed before I break the news to my family. I'm in my late 40sI appreciate everyone's kindness here while I'm dealing with these symptoms. I've gone downhill the past month and I'm just, having to wait for appointments right now.
I'm noticing myself having more trouble with remembering recent events. I can barely remember what I did yesterday or a few hours ago, even a few minutes ago.
Time seems to completely fly by or not move at all. I thought it was evening earlier but it was only 10am. I went downstairs to talk with my mother about taking an allergy tablet then forgot what I came down for very quickly.
I asked my mom to put some chicken wings in the oven for me and said I'd get them out when they were finished, so I did. I went down, and reached up to turn the light off above the stove, thinking I was turning off the stove itself. I realized fairly quickly but it also took me a moment to remember which buttons to press to turn it off. I felt genuinely confused, not like a momentary lapse.
I forgot if I took my concerta this morning, so I didn't trust my memory and just didn't take it so I wouldn't double dose. I'm pretty sure I didn't and that I was mixing it up with yesterday, but still.
Another thing that's gotten alot worse is I have a constant pressure on the right half of my head, and it feels like it's tingling, almost like it's low circulation. But it got worse when my memory/thinking worsened this past month.
I'm also much more tired, sleeping around 12 hours because it's just so tiring to be awake with this going on.
This is driving me insane. I also asked my mother to clarify what kind of dementia my family members on her side have had/have. My grandmother apparently had ministrokes that gave her hers, which I'm assuming would be vascular dementia. She thinks my great grandmother had alzheimers but isn't sure, and my uncle was diagnosed with frontotemporal. My uncle was diagnosed right before his 65th birthday. I'm pretty sure my grandmother and great grandmother were past 65, but I'm honestly afraid to ask if they were younger because it'd just fuel my fears.
Nobody in the house thinks anything is wrong with me, but I'm noticing my own shortcomings. I've been trying to ignore them or make excuses for myself, but everything's pointing to what I'm afraid of.
I even updated end-of-life care in my patient portal stating what my wishes were for my pets and belongings because I feel so sure about this. I don't know what to do. I feel helpless and waiting for an official diagnosis of anything is taking so long.
Hello @Lillian Magellan and welcome to the Dementia Support Forum. This is a UK based site but I have found a website which is based in Kenya which you might find useful and I have attached a link for your information. I would also suggest that you contact your doctor about your symptoms, they are probably nothing to worry about but best to get yourself checked out.Oh God. I'm also going through the same yet I'm a dimentia patient (mum)carerer. I'm so in denial but many have noticed. I go to the grocery , forget the keys there. Go back looking for them, find them but forget them again. So embarrassing. Also a neighbor talks to me seems I've never seen them in my life yet strangers look so familiar to me. I can't spell words correctly, I can't remember if I fed mum or not or if I gave her medication. I notice I'm nolonger meticulous in the house, neither I'm I taking care of myself as I used to. No more good grooming. As a Kenyan not sure where to get diagnosed before I break the news to my family. I'm in my late 40s
I wish you the best, I hope everything turns out okay!Oh God. I'm also going through the same yet I'm a dimentia patient (mum)carerer. I'm so in denial but many have noticed. I go to the grocery , forget the keys there. Go back looking for them, find them but forget them again. So embarrassing. Also a neighbor talks to me seems I've never seen them in my life yet strangers look so familiar to me. I can't spell words correctly, I can't remember if I fed mum or not or if I gave her medication. I notice I'm nolonger meticulous in the house, neither I'm I taking care of myself as I used to. No more good grooming. As a Kenyan not sure where to get diagnosed before I break the news to my family. I'm in my late 40s
This sounds truely terrifying-Raine: , you are in my prayers. 🙏🤞.I wish you the best, I hope everything turns out okay!
Thank you very much, I really appreciate it.!This sounds truely terrifying-Raine: , you are in my prayers. 🙏🤞.
Have you had your oestrogen and iron levels checked? I also have adhd and my cognition is **** before my period due to oestrogen drops. I now wear the patches and take prometrium and it helpsI appreciate everyone's kindness here while I'm dealing with these symptoms. I've gone downhill the past month and I'm just, having to wait for appointments right now.
I'm noticing myself having more trouble with remembering recent events. I can barely remember what I did yesterday or a few hours ago, even a few minutes ago.
Time seems to completely fly by or not move at all. I thought it was evening earlier but it was only 10am. I went downstairs to talk with my mother about taking an allergy tablet then forgot what I came down for very quickly.
I asked my mom to put some chicken wings in the oven for me and said I'd get them out when they were finished, so I did. I went down, and reached up to turn the light off above the stove, thinking I was turning off the stove itself. I realized fairly quickly but it also took me a moment to remember which buttons to press to turn it off. I felt genuinely confused, not like a momentary lapse.
I forgot if I took my concerta this morning, so I didn't trust my memory and just didn't take it so I wouldn't double dose. I'm pretty sure I didn't and that I was mixing it up with yesterday, but still.
Another thing that's gotten alot worse is I have a constant pressure on the right half of my head, and it feels like it's tingling, almost like it's low circulation. But it got worse when my memory/thinking worsened this past month.
I'm also much more tired, sleeping around 12 hours because it's just so tiring to be awake with this going on.
This is driving me insane. I also asked my mother to clarify what kind of dementia my family members on her side have had/have. My grandmother apparently had ministrokes that gave her hers, which I'm assuming would be vascular dementia. She thinks my great grandmother had alzheimers but isn't sure, and my uncle was diagnosed with frontotemporal. My uncle was diagnosed right before his 65th birthday. I'm pretty sure my grandmother and great grandmother were past 65, but I'm honestly afraid to ask if they were younger because it'd just fuel my fears.
Nobody in the house thinks anything is wrong with me, but I'm noticing my own shortcomings. I've been trying to ignore them or make excuses for myself, but everything's pointing to what I'm afraid of.
I even updated end-of-life care in my patient portal stating what my wishes were for my pets and belongings because I feel so sure about this. I don't know what to do. I feel helpless and waiting for an official diagnosis of anything is taking so long.
I'm waiting on results for iron bloodwork to come back but I I did read your message earlier and sent a message afterwards to my gynecologist asking if I could do a hormone panel, thank you for the suggestion!Have you had your oestrogen and iron levels checked? I also have adhd and my cognition is **** before my period due to oestrogen drops. I now wear the patches and take prometrium and it helps