So pleased you had a better visit, it’s amazing the difference one person’s absence can make to group dynamics.
advice please
- Thread starter jennifer1967
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- vascular dementia
maybe, can hope so. i think that his parents intense attention to everything he does with the amount of praise [every tiny thing so really doesnt mean anything] puts more pressure on him. they are both teachers who forget that he needs a mum and dad rather than being taught all the time.
im fuming. we were going to help medical students to be able to be better able to speak to those with dementia and their families so medical profession could understand the needs of those involved. the 2 students didnt turn up. speaks volumes of their committment to improve communication. im furious about the students and the university. they said that they expect their students to act professionally as they will need to do in the future. well god help us all if thats the case. nothing will change until their attitudes change from the very first year of medical school. have cancelled the other pair as well. not taking part any more.
no nothing. i was supposed to have another set of 2 but ive cancelled them and wont take any further part in the program
Dear @jennifer1967 So sorry to read this, as Patsy and I also participate in this scheme.
Our two pairs of students have been exemplary in both confirming and keeping their appointments.
We are in fact due a visit today which was confirmed by our pair just yesterday.
This program in sponsored by our very own AS, so for any of you who may be interested in the programme: https://www.alzheimers.org.uk/get-involved/time-dementia-programme.
Whilst I am saddened to hear that you have cancelled your involvement I hope that others who are involved do not suffer from the same experience as yourself.
I can also empathise with you as we have enough to do every day as a carer, let alone be let down by a pair of seemingly ‘Professionals’.
What did the Medical school co-ordinator say or your Alzheimers Society contact for the programme?
Colin.
they were both very sorry but i wasted an afternoon waiting. my husband must have built himself up so when i cancelled he went to sleep. he was absolutely exhausted. i just thought we were helping to progress and i havent got time to chase around them and do emails and phone calls just to see where they are. it would have been really good but .................................
I don't blame you @jennifer1967 and was so disappointed for you both when I read your earlier post
Doesn't exactly inspire confidence or motivate others to be involved in such a scheme, shame as it has the potential to have a very real transformational impact on this most vulnerable group of people.Personally we have kept 'offers' of participation in various things at arm's length... I just ask myself or when mum's receptive what would she want... a big no thank you methinks
Kudos to you though for trying, I just wouldn't have the patience (again I blame my mum's conditioning haha!).i thought because i complained about it so often that i would put my money where my mouth was and do something to improve it but it just wasted my time yesterday and wore him out. i wouldnt do anything against his wishes but i knew when hed had enoughI don't blame you @jennifer1967 and was so disappointed for you both when I read your earlier post
Personally we have kept 'offers' of participation in various things at arm's length... I just ask myself or when mum's receptive what would she want... a big no thank you methinks
that post was 2 years ago now. things are much better and hes been on memantine for 2 years which has calmed it down. he is happier and easier to care for.
