Young/early onset dementia research project- looking for participants!

kywsiu

Registered User
Jun 17, 2015
2
Hi everyone.

We are carrying out a research project to find out more about how people with young onset dementia tell others about their diagnosis, how they decide on telling others, and what relationships are like after the diagnosis is shared with others.

We hope that by researching, thinking and documenting these experiences, this will help raise people's awareness- that dementia can affect people's lives in different ways, especially when it happens at an earlier stage of life. We will also be using the findings of this project to develop recommendations for services, so that better support can be made available for people with young onset dementia.

We are looking for people who
1) have received a diagnosis of young onset dementia (diagnosis before 65 years old), and
2) do not currently have a severe and ongoing mental health condition, such as psychosis or major depressive disorder.

If you decide to participate, you will be asked to complete an interview with myself. I will be asking questions about your experiences on receiving a diagnosis and telling others about it.

Your participation is entirely voluntary. If you agree to take part and later wish to withdraw, you may do so at any time without giving a reason. All information obtained will be treated as strictly confidential and kept securely

The project has been approved by the National Research Ethics Service.


If you are interested in participating, or in finding out more about the project, please PM me here on the forum, or email me on y.w.siu66 at canterbury.ac.uk
 
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P J B

Registered User
Apr 21, 2015
4
Saxmundham
hello, I would like to take part in your project. Regards Peter

We are carrying out a research project to find out more about how people with young onset dementia tell others about their diagnosis, how they decide on telling others, and what relationships are like after the diagnosis is shared with others.

We hope that by researching, thinking and documenting these experiences, this will help raise people's awareness- that dementia can affect people's lives in different ways, especially when it happens at an earlier stage of life. We will also be using the findings of this project to develop recommendations for services, so that better support can be made available for people with young onset dementia.

We are looking for people who
1) have received a diagnosis of young onset dementia (diagnosis before 65 years old), and
2) do not currently have a severe and ongoing mental health condition, such as psychosis or major depressive disorder.

If you decide to participate, you will be asked to complete an interview with myself. I will be asking questions about your experiences on receiving a diagnosis and telling others about it.

Your participation is entirely voluntary. If you agree to take part and later wish to withdraw, you may do so at any time without giving a reason. All information obtained will be treated as strictly confidential and kept securely

The project has been approved by the National Research Ethics Service.


If you are interested in participating, or in finding out more about the project, please PM me here on the forum, or email me on y.w.siu66 at canterbury.ac.uk[/QUOTE]
 

edwardbs

Registered User
Jul 30, 2014
19
Lichfield Staffs
am i too late

Hi everyone.


Th5
We are carrying out a research project to find out more about how people with young onset dementia tell others about their diagnosis, how they decide on telling others, and what relationships are like after the diagnosis is shared with others.

We hope that by researching, thinking and documenting these experiences, this will help raise people's awareness- that dementia can affect people's lives in different ways, especially when it happens at an earlier stage of life. We will also be using the findings of this project to develop recommendations for services, so that better support can be made available for people with young onset dementia.

We are looking for people who
1) have received a diagnosis of young onset dementia (diagnosis before 65 years old), and
2) do not currently have a severe and ongoing mental health condition, such as psychosis or major depressive disorder.

If you decide to participate, you will be asked to complete an interview with myself. I will be asking questions about your experiences on receiving a diagnosis and telling others about it.

Your participation is entirely voluntary. If you agree to take part and later wish to withdraw, you may do so at any time without giving a reason. All information obtained will be treated as strictly confidential and kept securely

The project has been approved by the National Research Ethics Service.


If you are interested in participating, or in finding out more about the project, please PM me here on the forum, or email me on y.w.siu66 at canterbury.ac.uk
I would study.
I was first diagnosed 9 years ago and am 62 now I am not seriously depressed very down last winter after losing my partner of 12 yeA
I sound fine but have real trouble faces so have never been able to hide it. I am very
of gaps.
 
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