Hi Helena
My dad was diagnosed with Lewy Body Dementia in February this year.
As far as the swings from 'normality' into incoherence and back again, I'm not sure I coped with them very well before dad went into nh. In fact dad had already gone into what was initially intended as respite care but turned out to be permanent care before he was diagnosed. I would have coped with them better if I'd known he had LBD and that that was typical of it. As it was, I was totally baffled, feeling certain some days that there was something wrong, and then thrown by him being apparently OK the next day/ hour/ minute. That also made it hard with getting help because he'd seem out of his head when I phoned the GP for an appointment, but quite happy and with it once he got to the surgery. For a while I wondered if it was me that was losing it, and feared the GP also thought that
Now I know a bit more about it, I've kind of learned to expect the unexpected. Fasten your seatbelt and enjoy the ride. It's less scary of course now he's in permanent care, not the horrendous doubts and worries about his safety.
Thankfully I've had the advantage that I don't live too far from dad, he has wonderful neighbours, he had home care coming in before he had problems with his memory, and he's been pretty placid in terms of going to the GP when I ask him to.
Do you think your mother is at risk as a result of her condition? I wonder if it's worth giving the GP a ring and discussing your concerns. It may be that the GP can get to see her on another pretext, and 'just happen' to ask about other concerns. It won't hurt to check out if its a decent GP you're going to be able to work with or not.
You don't mention either what kind of relationship you have with her etc. But it might be a good idea to look into power of attorney as soon as possible. I just scraped in in time with it with my dad. That's probably important with most people with dementias though ...... not just LBD.
best wishes
Áine