Can anyone help? I've been using Talking Point quite a lot lately but it's occurred to me that I am posting in this section and it might not be the right place.
According to everything I've read about his symptoms, my Dad is at the severe, end stage of his dementia. I've interpreted this as being 'end of life care' , posted in what I thought was the appropriate section and have recieved lots of helpful and supportive replies to my mad ramblings, for which I'm extremely grateful, but must confess to feeling a bit of a fraud.
You see, most of the posts in this section seem to be about people who are in the last few days or weeks of their lives and my dad has been at this stage for a few years. Although deteriorating very gradually, he isn't 'actively dying' (I don't really like that term but can't think of anything else) - as far as I know, anyway.
I find it hard to cope with all the uncertainty about his illness and life-expectancy which is not helped by the fact that the NH he's in never seem to want to discuss how he's been and don't really report any changes in his condition to me (probably becuase everything's so gradual). But, I am feeling quite weary and exhausted by it all and suspect I will be on here quite a lot in future but I don't want to annoy or upset people by moaning on about my troubles when there are others so much worse off.
It may not even matter and you might think I'm worrying about nothing (I'm really good at that!) but I just thought I'd ask.
According to everything I've read about his symptoms, my Dad is at the severe, end stage of his dementia. I've interpreted this as being 'end of life care' , posted in what I thought was the appropriate section and have recieved lots of helpful and supportive replies to my mad ramblings, for which I'm extremely grateful, but must confess to feeling a bit of a fraud.
You see, most of the posts in this section seem to be about people who are in the last few days or weeks of their lives and my dad has been at this stage for a few years. Although deteriorating very gradually, he isn't 'actively dying' (I don't really like that term but can't think of anything else) - as far as I know, anyway.
I find it hard to cope with all the uncertainty about his illness and life-expectancy which is not helped by the fact that the NH he's in never seem to want to discuss how he's been and don't really report any changes in his condition to me (probably becuase everything's so gradual). But, I am feeling quite weary and exhausted by it all and suspect I will be on here quite a lot in future but I don't want to annoy or upset people by moaning on about my troubles when there are others so much worse off.
It may not even matter and you might think I'm worrying about nothing (I'm really good at that!) but I just thought I'd ask.