I remember early on in mum’s dementia that finding the Compassionate Communication list was my light bulb moment.
I wonder if the handbook could include something on what happens/ may happen when someone goes into a care home, either for respite or permanently, so that relatives have an idea of what to expect? So, a piece on preparing them ( maybe some love lies, a little holiday, the doctor wants you to have a rest), what to take, make a room homely, taking the person and asking the home to distract when you have to leave.
What the person might do, (my mum walked herself ragged for several weeks which was so distressing), others ask to come home and pack, how to help get someone settled, advice on talkng to the care home to get what you want, but also recognising that they can’t give the exact one to one care that you gave; that took me a lot of adjusting to. A wise TPer told me to pick my battles, which I do, luckily I don’t have many now.
How to deal with the guilt of having to place your relative, some reassurance that you have done the right thing.
These are all issues that I asked about and got great advice and support with from Talking Point. I don’t know what I would have done without it, and because of the posts here I have an idea of what to expect, so that as my mum deteriorates, I am sad, but not shocked or devastated which I might well have been.
I wonder if the handbook could include something on what happens/ may happen when someone goes into a care home, either for respite or permanently, so that relatives have an idea of what to expect? So, a piece on preparing them ( maybe some love lies, a little holiday, the doctor wants you to have a rest), what to take, make a room homely, taking the person and asking the home to distract when you have to leave.
What the person might do, (my mum walked herself ragged for several weeks which was so distressing), others ask to come home and pack, how to help get someone settled, advice on talkng to the care home to get what you want, but also recognising that they can’t give the exact one to one care that you gave; that took me a lot of adjusting to. A wise TPer told me to pick my battles, which I do, luckily I don’t have many now.
How to deal with the guilt of having to place your relative, some reassurance that you have done the right thing.
These are all issues that I asked about and got great advice and support with from Talking Point. I don’t know what I would have done without it, and because of the posts here I have an idea of what to expect, so that as my mum deteriorates, I am sad, but not shocked or devastated which I might well have been.