Have heard back from social worker they have said in around about way that to keep mum at home would not be cost affected and that it would be better to put mum in home I won't say what we said but French comes to mind
Mums physio came Tuesday just after phone call from SWorker so I was really down I must say she was great she has arranged for community matron to visit the day after we return from holiday and will be getting in touch with palliative team to tell them how things have gone down hill she feels we need the hospice help now at home and has been back in touch to say they are going to arrange to see us at mums MND clinic appointment in 3 weeks time they are also going to discuss mum having peg which I'm not sure about will think about it whilst away mum is chocking more when we feed her now brothers have said they will back me in what ever I decide
Cpn came today it had been suggested mum makes a living will but because she can't sign her name this will not be possible so cpn is going to arrange (can't think what he was called) but it's some legal person who will go through with me mum cpn and SWorker for me to become mums legal guardian As soon as possible
I don't know now if I'm looking forward to our holiday or not mum is very quite now but we are hoping with 3 of us giving 24 hr stimulation she will enjoy it we used to go to this resort when we were children and have spent many happy holidays here with mum and dad so we are hoping some little light will be switched on in mums memory
My cousin has just returned from the same hotel and has spoken to the manager who has been brilliant he has arranged a hospital bed for mum and adjoining rooms to my brothers he has also arranged oxygen if needed the local hospital is next door but hopefully we will not need it
Sorry this post is along one but I thought I would bring you all up to date and I will keep you posted when I have the meetings thank you love larivy
Mums physio came Tuesday just after phone call from SWorker so I was really down I must say she was great she has arranged for community matron to visit the day after we return from holiday and will be getting in touch with palliative team to tell them how things have gone down hill she feels we need the hospice help now at home and has been back in touch to say they are going to arrange to see us at mums MND clinic appointment in 3 weeks time they are also going to discuss mum having peg which I'm not sure about will think about it whilst away mum is chocking more when we feed her now brothers have said they will back me in what ever I decide
Cpn came today it had been suggested mum makes a living will but because she can't sign her name this will not be possible so cpn is going to arrange (can't think what he was called) but it's some legal person who will go through with me mum cpn and SWorker for me to become mums legal guardian As soon as possible
I don't know now if I'm looking forward to our holiday or not mum is very quite now but we are hoping with 3 of us giving 24 hr stimulation she will enjoy it we used to go to this resort when we were children and have spent many happy holidays here with mum and dad so we are hoping some little light will be switched on in mums memory
My cousin has just returned from the same hotel and has spoken to the manager who has been brilliant he has arranged a hospital bed for mum and adjoining rooms to my brothers he has also arranged oxygen if needed the local hospital is next door but hopefully we will not need it
Sorry this post is along one but I thought I would bring you all up to date and I will keep you posted when I have the meetings thank you love larivy