Dear Grommit,

So sorry it`s come to this.

Have you thought of phoning the AS helpline, 0800 300 0366 they are open till 6.30 p.m. They may be able to clarify the system.

Love xx

P.S. sorry it`s too late for today, but they operate from 8.30 a.m.

 

Hi Grommit, thanks for the rephrase, I was worried!

I'm sorry you've been having a bad time, I missed you.

I don't know about the voucher scheme, but it may be a variant of direct payments. If so, Norman is the one to help you, he has lots of experience, and actually gives talks on it. If you do a search on direct payment I'm sure you'll find some of his posts.

Sorry I can't be more help, but it sounds as if it would be worth investigating. I hope you manage to get something sorted out soon.

Love,

 

Hello Grommit, Hazel beat me to it, was going to say 'Direct Payments'.

Even with DP some SW really have no idea how the system works. I have only today taken all the info I gleaned from a Counsel & Care meeting into my local AS office (for reference)

Do hope you manage to get something sorted out.

Here, in this area, we managed to get one of the local centres for the elderly, to take under 65's for just one day a week on a trial period. That was 4 years ago.

Today, we still only have one centre, serving 50 mile radius, fully coping for one day a week.

Do try the Direct Payment route, if that is what is being offered.

 

Dear Grommit,

I missed you too! I can't be much help on the practical side but I really do hope you get something sorted out asap. Being under 65? How ridiculous is that, surely if the need if there, it's there.

Best of luck, I shall be thinking of you both.

Much love

 

Hi Grommit

As you know I'm in the wrong part of the country to be of any practical help, just wanted to send you a hug, and I hope you get some help soon.

Lots of love

Cate xxxx

 

Direct Payments: A Positive Story

Grommit,
Like others, I believe that you are into the Direct Payments system. It covers all sorts of help, not just respite. From a government web site ( http://www.direct.gov.uk/en/CaringForSomeone/MoneyMatters/DG_10018517 ) in answer to the questions What are Direct Payments For?

"Direct payments can be used to buy services from an organisation or employ somebody to provide assistance. As a carer, you can use a direct payment to purchase the services you are assessed as needing to support you in your caring role. This includes support that may help maintain your health and well-being. For example, driving lessons or a holiday so you can have time to yourself.

If you are assessed as needing domestic help, you may ask for a direct payment and buy the support services you need."

My wife's (J.) Care Manager phoned me earlier today to say that she has just got approval on my behalf for a Direct Payment for respite care and another for 2 weekly visits each for 2 hours to give me a break (J. is under 65).

The process for me was that the Care Manager, after arranging for a wide series of checks that I could do what I said and fully look after J. (cooking, house work, washing etc.) asked me how Social Services could best help me. At that time (summer), I honestly did not know. She arranged for someone in her group to take J. out twice a week over a couple of months to add to the already available assessment info. (from the consultant and the weekly memory clinic which J. attended for 9 months until she could no longer cope).

Social Services and the medics (consultant and GP) talked and came to me with the recommendation to plan for respite before Christmas and to have someone take J. out regularly (simply for a change for her and a break for me). Their combined thinking is that J. is living at a performance level way above her measured cognition level and they ascribe this to a combination of her innate intelligence (effect well known in the literature) and my care for her (a lovely tribute; also supported by a recently published major piece of research from the US). They want this to continue for as long as possible, even though the consultant tells me that, with J. having rapid on-set AD, the most probable prognosis is that J. will need an EMI unit care within the next 6 months or so (and I have worked with our son over the past 3 months or so on all the necessary planning for this).

The Social Services support implied in the Direct Payment is helpful in a key practical way - it puts me into the top tier of waiting lists for a bed for respite and a visitor (since Social Services do not have one spare, they have arranged with the local Age Concern office for one of their visitors to take the responsibility).

The systems can work - and in my experience usually do!!

 

Hello Grommit
Quite recently we got the OK for direct payments to pay for my mum's care at home. Now all her care is funded by the Social Services via direct payments and the independent living fund. Mum has 24 hour care.
The whole thing is means tested - so if you have savings this will effect it, but whatever your financial situaion absolutely go for it. It's hard to set up as you have to employ carers yourself and you have to manage the finances, but once it's set up it works very well. We now employ 4 carers who are lovely. Mum lives in Gloucestershire and they have a trust called 'The Penderels Trust' who help with employing people, accounts, payroll and contracts so there is very little you have to do in the end. (I think Penderels are a countrywide thing) If you do get the money make sure that you get put in touch with someone like that who can help you. As for getting the money, just push, push, push for it. Don't take no for an answer - and make a strong case for yourself and your wife. Good luck - it's really worth the effort - be a trail blazer...
Kate x

 

Immediate Family

Grommit,
At one point it looked likely that my sister would be able to take my wife (J.) for respite breaks. I was working with my care manager to get direct payment funding to help pay for this. In the event, family circumstances for my sister have changed and it is no longer possible for her to do it.

The Care Manager had told me that the meaning of "immediate" was purposely vague to give the LA leeway to support those upright citizens who deserved support and to protect themselves from those of a dubious disposition. (My phraseology is much more diplomatic than the one she used). She felt sure the Direct Payments Team (especially including the finance officer) would agree with her that I was upright. (It may also be important that the monetary award to me would have been low - means testing).

 

Grommit
I don't think your brother would be termed immediate family. I think it may just be a partner or parents of the person who is ill. I know that myself or brother could be paid. The only thing is you have to set up a trust to have direct payments if the person they re for isn't well enough to manage the money themselves - and you need three trustees. One has to be independent and so not family (although they will bend the rules on this if desperate). All trustees aren't allowed to be paid. Myself and my brother are trustees so we can't be paid for the hours we do - SO... as long as your brother isn't a trustee it should be fine for him to be a carer. Obviously check all that but i'm pretty sure i'm right....
good luck with it
katherine x

 

Grommit
have a look at this fact sheet.
Does that answer your query?
Norman

http://www.alzheimers.org.uk/After_diagnosis/Sorting_out_your_money/info_directpayments.htm

 

Grommit I think the answers are as follows
1) Yes, with the close relative proviso
2) See here http://www.direct.gov.uk/en/MoneyTaxAndBenefits/PensionsAndRetirement/MoneyInRetirement/DG_10014663 that covers emplyment after retirement
3) and 4) though I'm not going to make a stab at, since it all depends on your personal cicumstances AND the going rate for care in your community. I will offer this tidbit though: when I was looking at this for my mother the maximum her LA would have paid was the maximum the LA would have charged to provide the care themselves. There was a massive difference between what they would have charged and what it would have actually cost, and she wasn't eligible anyway, but I did note that major discrepancy.

 

Grommit
a thought ,all areas do not have voucher schemes.
Birmingham does not have them at present.
A stupid question, does Doncaster have them?
Norman