Sadly the title is meant more in sarcasm but that's hard to transfer onto a forum but here goes.
Its been awhile since I posted mainly as OH is in early stages of FTD, its taken nearly 2 years to finally get confirmation of this as she is now 50 so they were obviously trying to source another problem rather than the one I had pretty much come to the conclusion of.
Two years feels like a lifetime already to me watching her slowly get worse with remembering even the simplest things and names of pets/friends I guess we all know this and gradually except it.
Regretfully though and hence the title its now become apparent after gene testing what caused it and where it came from and now also who else it may affect, I had the unfortunate displeasure of informing all OH's siblings that there were now in the firing line as this gene ( MAPT mutation ) is fairly well recognized as being passed on thru the family line, this also includes our son who was told this life changing information while I was present.
As you can imagine its came as an even bigger shock than finding out OH has dementia I just wonder has anyone else come across this variant of the disease.
Not sure what else I can say but friends and social have been helpful so I've managed to get passed without the need for anything other than a hug so far.
Its been awhile since I posted mainly as OH is in early stages of FTD, its taken nearly 2 years to finally get confirmation of this as she is now 50 so they were obviously trying to source another problem rather than the one I had pretty much come to the conclusion of.
Two years feels like a lifetime already to me watching her slowly get worse with remembering even the simplest things and names of pets/friends I guess we all know this and gradually except it.
Regretfully though and hence the title its now become apparent after gene testing what caused it and where it came from and now also who else it may affect, I had the unfortunate displeasure of informing all OH's siblings that there were now in the firing line as this gene ( MAPT mutation ) is fairly well recognized as being passed on thru the family line, this also includes our son who was told this life changing information while I was present.
As you can imagine its came as an even bigger shock than finding out OH has dementia I just wonder has anyone else come across this variant of the disease.
Not sure what else I can say but friends and social have been helpful so I've managed to get passed without the need for anything other than a hug so far.