1. Welcome to Talking Point - an online community for everyone who is affected by dementia. Whether you have dementia or know someone who does, we will be there for you.

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  2. Q&A: "Anticipatory Grief" - Tues 27th 6:30-7:30pm

    Our next Q&A is on the topic of anticipatory grief - the feelings of grief or loss that can happen following a diagnosis of dementia. Ubeda from our Helpline will be answering your questions in this thread on the 27th February, from 6:30-7:30pm.

    Pop by and post your questions now and we'll answer them on Tuesday.

Tests, Tests and more Tests!

Discussion in 'Welcome and how to use Talking Point' started by MorryLou, Feb 13, 2018.

  1. MorryLou

    MorryLou Registered User

    Jun 19, 2017
    Dear All
    Back in September I took my mother to see her GP with memory concerns, and she did the basic memory tests. Then we saw a nurse who did a whole medical exam and extensive blood tests. Then came 3 x 1.5hr lots of in depth testing at home with the Memory Clinic people. Then there was another 2 assessments to see how she was coping in the house by Occupational Therapy. After a CT and an ECG, my mother has been referred on from the Memory Clinic and now needs assessment by a Community Psychiatric Nurse. This will need more than one session. She mentioned a care needs assessment and a Carers assessment.
    I phoned up the Psychiatric nurse to find out what was going on and why we had not had any results of all this testing. She said she had to contact someone else about this.......Is this normal?
    The anxiety of waiting for a diagnosis is awful!
  2. karaokePete

    karaokePete Registered User

    Jul 23, 2017
    It probably is normal - it certainly happened in my wife’s case. That thing is that dementia like symptoms can be caused by other things like depression, anxiety, vit B deficiency etc., etc., and all of these things have to be checked as they can be cured. Even the exact type of dementia has to be identified as medication can slow the progress of some but not others.
    It will, I hope, not take forever for you and your mother.
  3. MorryLou

    MorryLou Registered User

    Jun 19, 2017
    Thanks for the reply.
    I know there is a need to get the diagnosis right but....
    what I'm finding frustrating now is how all disjointed this has become. We have been seen by lots of medical professionals and have had no news about anything in fact. I was talking to this Community Psychiatric Nurse as though it was the first time we had been in contact with anyone and I was reeling off the saga once again. She hadn't seen any notes regarding my mother and to be honest we were all confused about the reasons for yet another assessment. I cancelled the appointment with her on her recommendation so that she could go on a fact finding mission, before coming back with a plan. Even my Mums GP didn't have any more information.
    In a couple of weeks it will be 6 months, so long!!
  4. stanleypj

    stanleypj Registered User

    Dec 8, 2011
    North West
    That does seem an awfully long time MorryLou. Is there any way that you could chase things up?
  5. Spamar

    Spamar Registered User

    Oct 5, 2013
    OH was diagnosed in 2007/8 and it took at least 6 months. Thought it would be longer theses days, the local hospital only had one type of scanner.
  6. MorryLou

    MorryLou Registered User

    Jun 19, 2017
    I would like to chase things up but don't know who the best person is at present. The Memory Clinic have passed my mother to the Psychiatric Team without even saying why. A very disjointed system!

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