Hi guys, I know none of us are on an easy road, especially if you are caring for a loved one at home, but I thought I'd make a thread on a few small things (and a few big) that really helped us on this journey as it progressed. Please share your small successes too that helped temporarily make things a lot easier & better for your loved ones, together we are stronger. ![Smile :) :)](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
Here's my list in approximate chronological order and what triggered us to make each changes:
At the Beginning:
Here's my list in approximate chronological order and what triggered us to make each changes:
At the Beginning:
- Wearable Help Button & Pocket Alarm (Battery Operated) - falls & memory issues.
- Automatic Heat/Motion Sensor Light in Bathroom - getting lost in bathroom, panic attack, turning light off by mistake.
- Walker - difficulty walking with a stick
- Nightlight (USB Chargeable) - disorientation and getting lost at night, unable to find light switches
- Landline Telephone with Big Buttons & 1 button speed-dial - difficulty using the phone
- Side Rails For Bed - Night disturbances & lack of balance
- Baby Monitor with Video (To Enable Constant Monitoring for Safety without Constant Disturbing them)
- Airplane Wheelchair To get To Bathroom - Loss of muscle strength, balance & coordination
- Kitchen Egg Timer - Difficulty reading a clock, losing track of time and frustration with being disturbed
- Removing Unnecessary Clutter & Highly patterned Fabrics - Triggering uncomfortable hallucinations & agitation
- Side Fastening Nappies & Waterproof Disposable Bed Pads
- Air Mattress (To Prevent Pressure Sores) -becoming more bedbound
- Hospital Bed with side rails (Elevation & Adjustable) - for changing & cleaning in bed
- Adjustable Bed Table On Wheels (To Eat & Use in Bed)
- Small Trolley on Wheels (For Changing & Cleaning Items)
- Shampoo Caps (For Dry Washing Hair in Bed)
- Hospital Gowns (That Fasten at the Back) - For comfort & easy changing
- Thickened Liquids & Dissolvable Medications - Trouble chewing, swallowing & beginning to cough with thin liquids
- Homemade Soft & Pureed Food - Eating less & less, taking longer and longer + trouble swallowing & chewing pasta, rice, bread, biscuits etc.
- Neck Pillow & Extra Support Pillows - Falling sideways when sitting in bed & difficulty keeping head up.