Hi everyone
Thanks for the many messages, i was touched when i read them, i'm sorry for not replying sooner but i'm at the hospital most of the time, when i eventually arrived home last night, i felt so nauseous and exhausted i fell into bed (fully clothed) and zonked and then today i dashed out early, just got back.
My brain is so jumbled up that i can't think straight, i can not remember what time i go to or leave the hospital, or even what day it is, everything is just all jumbled up.
I'm not even sure how i feel at the moment (I should be used to this as we went through this trauma for months in intensive care, but its something thats very difficult to deal with and its hard to keep adjusting to the ups and downs)
There is some good news and some bad and this is the way it always happens, the good news is that they have managed to control the bigger seizures, although his mouth, lips and tongue are a bit of a mess, however the smaller seizures are continous, this consists of his left eye, shoulder, arm & hand are violently jerking all the time, the doctors have said that they hope this will subside in time.
They beleive it is being caused by scar tissue on the areas of the brain which were damaged from the strokes, (but they still won't carry out the brain scan) his consultant has said he is used to seeing patients with this kind of damage, suffer from fits of this kind, however, i asked if he is used to these patients having these kind of fits for this length of time and his reply was "No". He said all we can do is wait. He said "I don't want to give you any false hopes, you must remember that he is always at risk from even the slightest infection as he has been so ill, and he is a very, very poorly gentleman. We are not out of the woods yet by a long way, we can only wait and take each problem as it arises"
The bad news is that they now believe he has phneumonia (This is what put him in intensive care in the first place) as his blood results have shown high levels of white cell count plus a high temprature but this will not be confirmed until the results of the chest x-rays come back on tuesday (due to the bank holiday) As things stand at the moment, he is still sedated, although he has opened his eyes a couple of times, he's not really aware of anything. He is still very weak and they are unable to give him a feeding tube due to the fits he is still having, however, he is on a drip. If you saw the result of being so long in icu you would know that he can't afford to lose any more weight.
What is distressing is that even though he is not consious, he keeps gripping my hand when i try to pull away and i know its because he is frightened.
I've no doubt that its going to be another long night until i know the results tomorrow.
Anyway, i don't know what else to say except thanks for the support.
Kind regards
Alex