signs

[Jane3]

I read a post "what are we looking for" we are in the EOL stage with mum and have been for six weeks now , She is in NH and I ask for updates every day when I go in. I was with her last night she is on an very low dose fentanyl patch with a top up of paracetamol, last night I noticed her neck is very stiff and her head was leaning back.
Is this a sign?
we saw the doc last week and she said the same as the NH there is no time scale but she does not foresee this stretching out for longer than a month.
are there any other signs?
Thank you and thinking of everyone in this horrible limbo of end of life with dementia it is unfathomable to me

 

[Betty74]

I am so sorry to read how difficult this sounds Jane3 I have no experiencer as yet and hope someone with support to offer will be along soon.
Sending kind thoughts to you all and hoping for peace.

 

[Collywobbles]

On YouTube, I’ve found the series of short videos by ‘Hospice Nurse Julie’ to be very informative and factual about the dying process, whilst being kind and respectful. She has a lot of useful information about what you’ll see, what the dying person seems to experience, and the sorts of things you can do.

 

[Jane3]

thank yiu I will look it up

 

[Jane3]

I have looked at the vids Hospice nurse Julie, very informative would recomend but not easy to watch. thank you.
I have requested tat the GP checks mum out on her visit to the home tmrw as I think she is starting to aspirate an also I mentioned the tightening of her neck. I might not be there when th doc visits as you never know what time it will be , I was assured by the nursing assistant that she would be there and bring it up with the doc.

 

[mhw]

the only clue I have ever found is that hospice nurses look for mottling of the hands and feet as a sign to tell relatives they have hours left to come in ...