Update ...... Mum has not settled at all, she has pretty much stopped eating and drinking and has been fighting care staff over her personal care. I have spoken to her just twice in the last ten days and to be honest it wasn't really a conversation and I think she is very close to checking out :-( I am wracked with guilt .... in 6 short weeks she is not the person we left in the UK .... should we have kept her her with us? I know the care home are trying their very best but I feel like she has given up because maybe she felt abandoned. How do you all do this - the guilt is ridiculous and the constant 'what ifs'. I am struggling but now in a different way - while she was here it was constant anxiety but now she is in the UK it is guilt and angst about how she is feeling and the fact that she is not with loved ones. She sounded so broken on the phone .... old age is rubbish, dementia is soul destroying for everyone involved ... sorry use this board to vent as family all have their own view of the situation and I look like a permanent crying wreck trying to navigate this in my own way.
Second time lucky!!!
- Thread starter anaworm
- Start date
This is awful for you….i am about to be in similar situation with my OH (if I go through with it)…a specialist care home which is a long way from where I live as there is nothing close…the guilt at the very thought of it is making me doubt myself although I know for him it may be better in the long run. When we live out of the UK there are so few options
I'm so, so sorry - I know exactly how you feel. Ma is in the UK and I'm in the US.
On really, really bad days (for me), I just want to sell up and move back to UK and deal with what I have to. The guilt and "what ifs".
On just bad days, I realise even if I'm next door I can't fix it.
It's dementia. She's not going to get better. Most of the time she's trembling over the phone and crying when I video call with her. Oh and yes, I've abandoned her too.
You don't stop thinking about it. You don't stop trying to "fix" it. It's blimmin awful. The guilt - aaarrrrgggggg! It's always there.
Ma's been in the home for over 4 months now and not settled. But she won't. She's feisty and stubborn and that won't go away.
The staff at one point tried to complain to me about Ma. She was pacing all the time and going into people's rooms (looking for me - not sleeping or going in the beds like some have done in her room)
I mean, seriously?!?! I've seen people spit and be verbally abusive and Ma's pacing is annoying you? There's more but I digress.
My point is -
Today is not such a bad day and I realise I've done everything I can possibly do to help her. I've put her in a safe place. YOU have put your Ma in a safe place. You have done the right thing.
Ma's not happy there but she wasn't happy at home.
She doesn't wanna bathe - leave her. I asked her one time why she wouldn't shower and she said "where am I going? who's going to notice?". She has a point. I did say, well the people in the church will notice but whatever. The more they left her alone and made her think it was her choice - the more she's fine with it.
They stuff her with food all the time - the more they force her to eat, the more she would not eat. I told them to NOT force her. Just leave it there and if she wants it, there you go. If not, that's okay too.
I let the home deal with it. That's why she's there.
They will never take care of her the way you did. But at some point, you wouldn't be able to either.
If anyone ever harmed her or I felt she was unsafe, then I would move her to another home (lord help me, I will have a breakdown if I have to do that) but never back "home".
Try and breathe. And not be so hard on yourself. There's only so much you can do. xxx
On really, really bad days (for me), I just want to sell up and move back to UK and deal with what I have to. The guilt and "what ifs".
On just bad days, I realise even if I'm next door I can't fix it.
It's dementia. She's not going to get better. Most of the time she's trembling over the phone and crying when I video call with her. Oh and yes, I've abandoned her too.
You don't stop thinking about it. You don't stop trying to "fix" it. It's blimmin awful. The guilt - aaarrrrgggggg! It's always there.
Ma's been in the home for over 4 months now and not settled. But she won't. She's feisty and stubborn and that won't go away.
The staff at one point tried to complain to me about Ma. She was pacing all the time and going into people's rooms (looking for me - not sleeping or going in the beds like some have done in her room)
I mean, seriously?!?! I've seen people spit and be verbally abusive and Ma's pacing is annoying you? There's more but I digress.
My point is -
Today is not such a bad day and I realise I've done everything I can possibly do to help her. I've put her in a safe place. YOU have put your Ma in a safe place. You have done the right thing.
Ma's not happy there but she wasn't happy at home.
She doesn't wanna bathe - leave her. I asked her one time why she wouldn't shower and she said "where am I going? who's going to notice?". She has a point. I did say, well the people in the church will notice but whatever. The more they left her alone and made her think it was her choice - the more she's fine with it.
They stuff her with food all the time - the more they force her to eat, the more she would not eat. I told them to NOT force her. Just leave it there and if she wants it, there you go. If not, that's okay too.
I let the home deal with it. That's why she's there.
They will never take care of her the way you did. But at some point, you wouldn't be able to either.
If anyone ever harmed her or I felt she was unsafe, then I would move her to another home (lord help me, I will have a breakdown if I have to do that) but never back "home".
Try and breathe. And not be so hard on yourself. There's only so much you can do. xxx
Thank you for replying - Good Luck with it all, I wish the very best for you and your OH.... and yes it will be better for him in the long run and may be better to get him in and settled and used to the new routine when able to do so more easily. We questioned our timing (I have questioned all my decisions a thousand times) and the bottom line is that you will never know if you had done something else or something different if it would have been better so you just try hard to move forward and not over analyse what's been and gone ... take care (P.S. I am much better at saying this stuff than doing it ....
Thank you so much for this - it is so good to hear from others in similar situations. We are lucky because we are able to get to UK reasonably quickly and unfortunately my Mum has really declined very rapidly since she has been here and it has meant that I am now back in the UK for the 2nd time since we moved her and my OH has also been over to visit in that time. We were told last week that due to her lack of eating and drinking she was deteriating fast and so I have made the decision to come over. The first day was reasonably good and I was surprised - the last two days have been awful - she is literally skin and bones, so frail lying in bed, mouth open and semi conscious. It is heart breaking to watch and I continue to challenge myself about if we had kept her at home would this have happened (it would - but would it have been so quick). The only saving grace is she says she is in no pain and is still on no medication (that is pretty much the whole of her 91 years meds free) We really are on the last leg now and I am watching and waiting for that phone to ring when I am not there. This forum has been a huge help to me just to find solace in the fact that what we are going through is the disease.... I do not wish this on any sufferer or any family member it is the cruelest! I completely agree with your attitude - the care home doe seem to over face with food and are fanatical about washing!! For us our journey is very near an end .... but we wish you and your Ma all the best - stay strong and thank you for your insight I really appreciate itI'm so, so sorry - I know exactly how you feel. Ma is in the UK and I'm in the US.
On really, really bad days (for me), I just want to sell up and move back to UK and deal with what I have to. The guilt and "what ifs".
On just bad days, I realise even if I'm next door I can't fix it.
It's dementia. She's not going to get better. Most of the time she's trembling over the phone and crying when I video call with her. Oh and yes, I've abandoned her too.
You don't stop thinking about it. You don't stop trying to "fix" it. It's blimmin awful. The guilt - aaarrrrgggggg! It's always there.
Ma's been in the home for over 4 months now and not settled. But she won't. She's feisty and stubborn and that won't go away.
The staff at one point tried to complain to me about Ma. She was pacing all the time and going into people's rooms (looking for me - not sleeping or going in the beds like some have done in her room)
I mean, seriously?!?! I've seen people spit and be verbally abusive and Ma's pacing is annoying you? There's more but I digress.
My point is -
Today is not such a bad day and I realise I've done everything I can possibly do to help her. I've put her in a safe place. YOU have put your Ma in a safe place. You have done the right thing.
Ma's not happy there but she wasn't happy at home.
She doesn't wanna bathe - leave her. I asked her one time why she wouldn't shower and she said "where am I going? who's going to notice?". She has a point. I did say, well the people in the church will notice but whatever. The more they left her alone and made her think it was her choice - the more she's fine with it.
They stuff her with food all the time - the more they force her to eat, the more she would not eat. I told them to NOT force her. Just leave it there and if she wants it, there you go. If not, that's okay too.
I let the home deal with it. That's why she's there.
They will never take care of her the way you did. But at some point, you wouldn't be able to either.
If anyone ever harmed her or I felt she was unsafe, then I would move her to another home (lord help me, I will have a breakdown if I have to do that) but never back "home".
Try and breathe. And not be so hard on yourself. There's only so much you can do. xxx
