Some of you on TP will know that I looked after Mum in her own home for 17 years until she died in 2013. Mum had VD and although all language had gone, she still knew us and was surrounded by all of us who loved her and kept her connected, right to the end. We're still caring for my MIL who lives with us and who is now in the end stages of Alzheimer's. I haven't posted on here for a while. I just needed some 'time out', even though the caring has continued day by day, week by week. I'm now working part-time supporting other carers who try to navigate the tortuous routes of accessing care and funding. Sometimes I'm asked to speak to student nurses about what it's like to care for someone living with dementia - the ups and the downs - and the frustrations of trying to liaise between services where people so often want to provide support but where protocols and processes often get in the way, leaving support so very short of what's really needed. In two decades of caring, I've heard so much about person-centred care; about the rights of carers and those whom we care for, to have a voice, to live well - yet it seems harder than ever. There is the political will - and then there is the cold reality of what daily life is really like. I have the chance, only for Scotland, I'm afraid, to feed back into the Scottish psychiatric service (from psychiatrists to CPNs and the CMHTs) in the hope that common-sense and compassion will prevail instead of targets and jobsworths. We need that magic vaccine. But until that day, care is all that we have. So I would like to invite any of my fellow carers, or those who are living with dementia, to post or PM me. Tell me how the service has helped you, how it could be better, how it has let you down and cast you adrift. Mum's psychiatrist appeared once, never to be seen again. His attitude was poor, he didn't read Mum's background notes and when he left, she fell into a deep depression that lasted a year. By contrast, the CPN was wonderful - full of practical advice and contacts but she retired and was never replaced. Today, I see carers battling on without the link workers that they have been promised; after three months, you fall off the contact list and it's back to the GP for a referral all over again. Maybe psychiatrists have only a limited role to play:maybe it's the CPNs that we need. If you choose to post or contact me, I will take your stories forward (please no real names) and I promise I will try my utmost to get your evidence heard.