The live in care option now not going to happen - things have moved on. Permanent care has been a horrendous decision to make, but the time has come and it will happen - hopefully still in a controlled way, in a Home we feel comfortable with. It is not easy as we don't sleep much, MiL being up most of the night, distressed, confused and aggressive despite her antipsychotic.
She has been assessed for one Home (emd) who refuse to take her due to her night time activity. Next Home for assessment will be an EMI residential and, failing that we are on a list for placement in October for EMI Nursing, assessment for this due in a few weeks.
A CHC assessment was undertaken back in March. We discovered, from the CCG yesterday (having heard nothing) that the case had been closed by the team dealing with it due to lack of evidence back in July. They had asked the team for evidence and we provided what we had eg notes going back a few years to show how she was deteriorationg. Obviously we cannot provide nursing notes as she lives with us! The team did not inform us that the case had been closed, only that it had been declined (this news came some weeks after the case had been closed) and though we then asked for written confirmation of this in order to appeal, this was not going to happen. We had fully expected not to receive funding (though we think she should get it and would have appealed), but wished to go through the process in order for us to understand why it was being declined. Does anyone have any thoughts on this please, and in such as case as ours, how can the correct evidence be found? MiL has no other illnesses, just has a diseased brain causing all manner of problems. This is the second application that has ended in this way, and we are not told the whole truth.
Would appreciate your thoughts on any of the above
She has been assessed for one Home (emd) who refuse to take her due to her night time activity. Next Home for assessment will be an EMI residential and, failing that we are on a list for placement in October for EMI Nursing, assessment for this due in a few weeks.
A CHC assessment was undertaken back in March. We discovered, from the CCG yesterday (having heard nothing) that the case had been closed by the team dealing with it due to lack of evidence back in July. They had asked the team for evidence and we provided what we had eg notes going back a few years to show how she was deteriorationg. Obviously we cannot provide nursing notes as she lives with us! The team did not inform us that the case had been closed, only that it had been declined (this news came some weeks after the case had been closed) and though we then asked for written confirmation of this in order to appeal, this was not going to happen. We had fully expected not to receive funding (though we think she should get it and would have appealed), but wished to go through the process in order for us to understand why it was being declined. Does anyone have any thoughts on this please, and in such as case as ours, how can the correct evidence be found? MiL has no other illnesses, just has a diseased brain causing all manner of problems. This is the second application that has ended in this way, and we are not told the whole truth.
Would appreciate your thoughts on any of the above