Pete may be about to start end of life care
- Thread starter LYN T
- Start date
Lyn, I really don't know how your able to face this so bravely and squarely for so long.
Like Gwen I wish you peace and comfort. xx
Like Gwen I wish you peace and comfort. xx
Hello Lyn, I havent posted often but have been following your journey. My dad is now in a nursing home in the late stages of this vile disease. Last year he started developing blisters like you describe, on his chest and upper arm the size of a 10p piece. No reason was ever discovered for them and they were dressed daily and gradually disappeared.
My parents have been together since they were 15 and recently celebrated 56 years married, mum stays for hours every day and it breaks my heart to see them, some days dad is aware and some days he isnt but he cant communicate and hasnt walked for 15 months. He has to be fed and will eat all his food even if its with his eyes shut.
Love and best wishes, Linda x
My parents have been together since they were 15 and recently celebrated 56 years married, mum stays for hours every day and it breaks my heart to see them, some days dad is aware and some days he isnt but he cant communicate and hasnt walked for 15 months. He has to be fed and will eat all his food even if its with his eyes shut.
Love and best wishes, Linda x
Thank you everyone
Jeany-the blisters don't look like the ones on Allans legs. They are sort of watery. The DN thought that Pete could have rubbed his own skin. I'm not sure-that would have taken some rubbing and I don't think the poor love has the strength to do that.
Saffie-Pete is being turned every two hours because he is mainly bed bound now and also when the DN had a look at his skin viability she was concerned a little bit. No bed sores but Pete has psoriasis and he has a particularly bad bit on his lower back. She doesn't want it to give trouble and wants to keep him off his bottom area if at all possible.
I'm dreading finding out what weight Pete is now-he was weighed yesterday. Well the Carers were going to try. I may not ask.
Have as good a day as you can Everyone
Love
Lyn T
Jeany-the blisters don't look like the ones on Allans legs. They are sort of watery. The DN thought that Pete could have rubbed his own skin. I'm not sure-that would have taken some rubbing and I don't think the poor love has the strength to do that.
Saffie-Pete is being turned every two hours because he is mainly bed bound now and also when the DN had a look at his skin viability she was concerned a little bit. No bed sores but Pete has psoriasis and he has a particularly bad bit on his lower back. She doesn't want it to give trouble and wants to keep him off his bottom area if at all possible.
I'm dreading finding out what weight Pete is now-he was weighed yesterday. Well the Carers were going to try. I may not ask.
Have as good a day as you can Everyone
Love
Lyn T
Just catching up and am so sorry to read of Pete's further problems. My heart goes out to you, Lyn. You are being so brave when you must feel total devastation inside. Sending loving thoughts. Verityxxx
Sent from my GT-N5110
Sent from my GT-N5110
Oh Lyn, it is so terribly heartbreaking and makes us feel helpless. Regardless of knowing what's around the corner when this journey begins it is still a shock when there's any deterioration. I just hope Pete is comfortable and I'm sure he knows when his love is with him. I hope you are able to have some lovely calm and special moments with him.
I wish you much strength and peace.
Stephanie, xxx
I wish you much strength and peace.
Stephanie, xxx
Today's hug is the biggest yet, Lyn. Hope you're ready........here it comes! X All love Shelagh
