Hello everyone,
I am after advice please. My mother has frontal lobe dementia and MND. She is 65 years old. Although severely cognitively impaired, she is still mobile and can do some simple tasks.
Swallowing/choking has become a problem (because of the mnd which is most obvious in her cheeks/tongue/neck). She is not even tolerating a soft food diet very well. The neurologist has recommended a PEG. Now my mother is not end stage with the dementia bt I don't feel that a peg is appropriate when she has a progressively deteriorating condition (well two). It seems almost cruel. I am sure my mother wouldn't have wanted artificial feeding (when she was of sound mind).
The neurologist said that mnd can last for years and that muscle paralysis is not a given in all patients. I would rather let nature decide when it's my mother's time and avoid the suffering that we know is in store.
My mother was living a completely independent life 20 months ago. Now she needs 24/7 supervision, is almost mute, can't understand a conversation, is faecally incontintent from time to time, suffers delusions/paranoid thought etc).
Please could I have your opinions. The neurologist seems flabbergasted by my reluctance to have a peg for mam. What would you do? What would you want for yourself/your loved one?
Thanks in advance, Berni x
I am after advice please. My mother has frontal lobe dementia and MND. She is 65 years old. Although severely cognitively impaired, she is still mobile and can do some simple tasks.
Swallowing/choking has become a problem (because of the mnd which is most obvious in her cheeks/tongue/neck). She is not even tolerating a soft food diet very well. The neurologist has recommended a PEG. Now my mother is not end stage with the dementia bt I don't feel that a peg is appropriate when she has a progressively deteriorating condition (well two). It seems almost cruel. I am sure my mother wouldn't have wanted artificial feeding (when she was of sound mind).
The neurologist said that mnd can last for years and that muscle paralysis is not a given in all patients. I would rather let nature decide when it's my mother's time and avoid the suffering that we know is in store.
My mother was living a completely independent life 20 months ago. Now she needs 24/7 supervision, is almost mute, can't understand a conversation, is faecally incontintent from time to time, suffers delusions/paranoid thought etc).
Please could I have your opinions. The neurologist seems flabbergasted by my reluctance to have a peg for mam. What would you do? What would you want for yourself/your loved one?
Thanks in advance, Berni x