It's Daisy here, back with her problems again.
To update my recent isues....
Husband has moved RAPIDLY (after 3 weeks + on a ventilator) from ICU .... to HDU ..... to the main ward.
It seems that they could not get rid of him quick enough!!
Here's where the REAL problems start.
The ward have issued a SECTION 2 to the Social Worker, and 'say' he is ready to come home !!
Right now he cannot walk... he's doubly incontinent (having removed his catheter) .... and is SERIOUSLY confused + + +.
He thinks he's sat in the departure lounge at Heathrow !!
He's rambling away.. going from one subjuct to another ... to another....
TO TOP IT ALL OFF...... HE'S THINKS I'VE KILLED THE DOG !!
We've never had a dog!!!
It's OK to laugh out loud at thiis point if you so wish
On a 'good note' (if you can call it that...)... at least the staff and doctors on the Neuro Ward can hear what he is like... and hopefully take notes...
In between the rambling... he is sort of OK.
Would youu like a coffee..? ...... yeah... go on then....
He's shaking like crazy when he hold a cup/beaker....
Hot fluids are a definite danger ... and this needs watching.
I've TOLD the ward (after speaking to the CPN and husband's Social Worker) that I am not prepared to have him back home unless we have a NEW care package in place.
I've also asked for several things to be assessed BEFORE he is expected to come home.
I WANT a home visit/ assessment by the physios / OT's.... etc..
I don't know if I can manage / handle him on my own.
I will MOST probably need a hoist .....
but no advice on how to get hold of one....
It makes me SO ANGRY that the hospital are prepared to send him home in the condition he is in.
He has had a very quick physio assessment.... where he walked a few steps with 2 physio's, one on either side....
SO IT IS possible that he can walk again ... (Not forgetting his previous strokes / defecits on his left side).....
They just expect me to keep handling all that is thrown at her.....
I was most polite in requesting my / his needs BEFORE he is going to come home.
I want to see the incontinence nurse and have thiings in place too.
They were prepared to send him home like this... with NO advice etc..
just leaving everything up to me.
No incontinence products... etc....
Needless to say the staff are more than a bit miffed at me... so be it.
I REEAAALLLYYY don't like upsetting or annoying people...
I'm tired of fighting for my rights as a carer and a citizen / wife etc....
Anyway, I'm not giving up yet.
Social Worker says put in a complaint to the PALS people....
But I'm going to wait till he's at home BEFORE I do that.
CPN says that my husband SHOULD NOT really be coming home to me in the first place, and is enquiring about 'intermediate care'..... looking towards long term care...
They say that it is more than likely that I won't be able to handle him physically on my own anyway.... with me being to petite etc.....
Thanks for letting me go on .....
Take Care
DaisyG