Newly diagnosed

Discussion in 'I have dementia' started by Papa1, Dec 24, 2018.

  1. Papa1

    Papa1 New member

    Dec 24, 2018
    3
    Hello
    I was diagnosed as having early stage mixed dementia on friday 21/12/2018.
    I am 58yrs old. I don't really know what i want i just feel that i would like to hear from somebody in the same position.
     
  2. nellbelles

    nellbelles Volunteer Host

    Nov 6, 2008
    7,970
    leicester
    Hello @Papa1 welcome to TP, the forum has several members in a similar situation to you and I’m sure they will be along to support you.
    I hope now you have found us you will continue to post
     
  3. karaokePete

    karaokePete Volunteer Host

    Jul 23, 2017
    3,861
    Male
    #3 karaokePete, Dec 24, 2018
    Last edited: Dec 24, 2018
    Hello @Papa1, welcome from me too.

    My wife was diagnosed with early onset dementia a couple of years ago. The best thing I can say to you is that we are both still enjoying life despite the dementia related issues. I feel it helps to live in the moment and remain positive.

    Do keep posting for information and support.
     
  4. Papa1

    Papa1 New member

    Dec 24, 2018
    3
     
  5. Papa1

    Papa1 New member

    Dec 24, 2018
    3
    Hello
    Thankyou for your words. My faith is helping and i am a positive thinkning person. It is just the not knowing, because only just being diagnosed.
    Thamks again.
     
  6. karaokePete

    karaokePete Volunteer Host

    Jul 23, 2017
    3,861
    Male
    I didn't want to bombard you with info.
    If you want to, good things to look at are the Society Publications list and the page where you can do a post code search for your local support services. Just click the following links. Apart from that looking at old threads can be useful and you should feel free to ask any questions. Best of luck to you

    https://www.alzheimers.org.uk/find-support-near-you

    https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list
     
  7. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    67,562
    Kent
    Hello @Papa1

    Not knowing is tough especially while you try to come to terms with your diagnosis if you can ever do so. All I can say is everyone`s dementia may have similarities but people face the challenge in individual ways. None of us know what to expect in life from day to day, with or without dementia.

    If you can be strong enough to make the most of every day of your life from now on, as a positive thinker with a strong faith, it may not be quite as bad as you fear.

    Talking Point is a supportive community so please don`t hesitate to stay with us.
     
  8. Ruth1974

    Ruth1974 Registered User

    Dec 26, 2018
    25
    Hi, my husband was diagnosed with early onset alzheimers 21/2 years ago. I know that its a horrible shock even if you were expecting a diagnosis but really, you are still the person you were last week and for us, in this 2 1/2 years, we have made adjustments but things are not that much different really.

    Its ok. Really it is x
     
  9. Teddy1960

    Teddy1960 Registered User

    Oct 24, 2018
    21
     
  10. Teddy1960

    Teddy1960 Registered User

    Oct 24, 2018
    21
    Hi there , my husband was diagnosed in November 18 and he is 57.

    We knew something was wrong for a few years though just couldn't get a diagnosis.
     
  11. PJ

    PJ Registered User

    Jan 26, 2017
    290
    Female
    Bristol
    Hi @Papa1 sorry to hear of your diagnosis but I’m guessing you, like many of us, knew there was something wrong for a while. I was diagnosed in March 18 with FTD I was 51 & to be honest it came initially as a relief then the fear kicked in.
    But just as @Ruth1974 said you are still the same person you were just before your diagnosis.
    We are all here for you if you want to let off steam or talk about your fears.
    Happy 2019 :)
     
  12. Norrms

    Norrms Registered User

    Feb 19, 2009
    5,223
    Male
    Torquay Devon
    Hello my friend, i was diagnosed at fifty and now 61 so please believe there is always hope xx
     
  13. Countryboy

    Countryboy Registered User

    Mar 17, 2005
    1,321
    Male
    Cornwall
    Hi I was diagnosed with Alzheimers aged 57 and FTD aged 60 continued working in full employment until age 65 I'm now 76 still going strong ok few old age aches and pains but I am still above ground best not to worry
     
  14. One Moment At A Time

    One Moment At A Time Registered User

    Jan 4, 2019
    13
    Hi, I too been Dx with memory loss, I'm a 58 yrs., old male, disabled US Army veteran (who served our blessed Nation with respect, honor & pride) cancer survivor among other disabilities, I been prescribed with Namenda XR 28 & Aricept 5 MG, yes on daily basis I experience anxiety, depression & fear, but I also have learn on a daily basis ** to look at these normal emotion "straight at it's face" & tell them you "are not going to shackle me", because I believe 100% on a Higher Power, although I don't attend any temple (I respect them all) I have two very helpful weapons 24/7 1) The Lord Prayer & 2) The Serenity Prayer, I been blessed with family (familia), friends (amigos, I have learn that "control fear" is a normal daily issue for me, the antidotes for all the prior mention emotion that easily "shackle" me, is sincerely believing on a Higher Power, in family & friends the above two mention prayers & ** not forgetting that the only thing I have for certain thank God is 'today & now', on a daily basis I must stay active, have fellowship with loved ones & friends, get involved on daily hubbies (tv, reading, crossword puzzles, hagging out with my grandsons 8 & 10 yrs., of age, seeing historic boxing match on my cell phone, help my wife cook & with same errands, may the Higher Power of your understanding bless you, be safe, take care (I forgot to tell say I love playing dominos with my two Treasures (grandsons [nietos], & don't be timid to reach out any time --- One Moment At A Time.
     

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