new user

p34nut5

Registered User
Apr 17, 2008
23
southampton hants
Hello,

My mum has got Alzheimers and it would be great to be able to keep in touch with some others with experience of Alheimers. She hasn't been diagnosed for long, but recently she has taken a turn for the worse and is experiencing some psychotic problems which has been very difficult for me to deal with. Does anybody else have any experience of Aricept having awful side effects ie extreame agitation and anxiety? One doctor has told me that her recent problems are probably caused by a small stroke, but another thinks the psychotic experience could be a bad side effect of the Aricept? The pyschotic tendancies only came on when she started the Aricept? Is this a coincidence? I would love to hear from anybody with any information about this. Thank you.
 

helen.tomlinson

Registered User
Mar 27, 2008
541
Hello P34nut5,

I just wanted to say "hello and welcome to Talking Point". I do not have any of the information you require but I do know that lots of others do and you will be getting lots of the answers and support you need. I have found that reading what others have posted is very informative.

Best wishes to you

Love Helen
 

Grannie G

Volunteer Moderator
Apr 3, 2006
70,347
Kent
Hello Sue.
My husband had very dramatic side effects with Aricept. He had visual and auditory hallucinations which were terrifying.
As soon as he stopped taking Aricept, the hallucinations stopped too. He was then tried with Reminyl and had the same problems. So he no longer takes anything.
 

p34nut5

Registered User
Apr 17, 2008
23
southampton hants
hello Sylvia

Hello Sylvia,

Thank you for your reply. That's very interesting about your husband. I want to believe that mum's psychotic problems have been caused by the Aricept rather than a small stroke. Mum is 73. The pychosis is so bad that the consultant has said that she will need to be hospitalised if the latest drug isn't effective, she's on Olanzapine for psychotic disorder. The doctor said that he doesn't think that her psychosis is due to the Alzheimer's so it does all seem to suggest it's a direct result of Aricept.

Sue
 

Grannie G

Volunteer Moderator
Apr 3, 2006
70,347
Kent
I must say, Sue, there has never been any indication that my husband has had a stroke or TIA.
This is the danger when comparing side effects, the difference in medical conditions.
My husband is diabetic, so prone to circulation problems which may have contributed towards his Alzheimers.
It is really a medical decision whtether or not your mother`s psycosis has been caused by her strokes or by Aricept.
 

ChrisH

Registered User
Apr 16, 2008
281
Devon, England
Hi Sue
The side effects issue is difficult. My mum is on Reminyl and they increased the dose a couple of weeks ago. As I live a long way away and only get to see her about every 6 weeks it's difficult for me to monitor any changes. Luckily she has an OT or support worker going in every week and friends who liase with them.
I was with her a couple of days ago and noticed she is a bit more agitated than she has been and was also complaining about her right foot saying it "went over" when she was out a few days before. Was this due to loose shoes, uneven paving or something else? She did have a small stroke, probably a couple of years ago, which seemed to affect the left side a bit so I was worrying that she might have had another.
The problem is that the increased agitation may be the result of my uncle dying recently (I took her to the funeral 2 days ago)and it's unfortunate that it coincided with the increased medication.
I'll keep my fingers crossed for you that they can find some way to help your mum's condition. It must be very scarry for you. It's horrible seeing someone you love completely change their personality, and even worse if, like my mum, you know they are aware of it.

Chris
 

p34nut5

Registered User
Apr 17, 2008
23
southampton hants
hello

Hello Chris,

Thanks for the reply. The side effects issue is difficult as you say. With mum it's been the suddeness of change in her that has scared me. It just all ties up with the beginning of the psychotic problems coinciding with her starting the Aricept so your mothers changes would seem to tie in with the increase of reminyl. I wonder why no health professional has explained before she started it that these symptoms could occur. I read all the other possible side effects and was told about them. I'm wondering how many other people have been through this and why the doctors don't warn about it if it is more common than not?

Best wishes,

Sue
 

mrennie25@btint

Registered User
Apr 18, 2008
7
glasgow
Hello,

My mum has got Alzheimers and it would be great to be able to keep in touch with some others with experience of Alheimers. She hasn't been diagnosed for long, but recently she has taken a turn for the worse and is experiencing some psychotic problems which has been very difficult for me to deal with. Does anybody else have any experience of Aricept having awful side effects ie extreame agitation and anxiety? One doctor has told me that her recent problems are probably caused by a small stroke, but another thinks the psychotic experience could be a bad side effect of the Aricept? The pyschotic tendancies only came on when she started the Aricept? Is this a coincidence? I would love to hear from anybody with any information about this. Thank you.
hi new member my mother in law was also on aricept she was on this for a litter over 6 months and the side effects were bad she didnt sleep she was wetting her self all the time and had very bad nites were she would be up half the nite they have now taken her of the drug because they say that is isnt doing anything for her the wetting has stopped and she is getting a decent sleep now
 

p34nut5

Registered User
Apr 17, 2008
23
southampton hants
hello

hi.

It's interesting you mention bed-wetting. Interesting that mum has also developed a uniary tract infection since starting the Aricept!! Do the doctors know all this I wonder? They haven't told me about any of this if they do.

Sue