1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. vmmh

    vmmh Registered User

    Jun 25, 2018
    71
    I haven't followed or posted in a little while but have used everyone's advise in situations where I found myself. In October I placed my husband (with early onset dementia) on Hospice. I believed he was approaching the end of his journey and that he fit Hospice's "less that 6 months to live" guideline. Thankfully he slowly improved back to eating better and being more alert, although he was no longer able to stand up on his own or with only one person assisting. Two people were needed and he could only take a few steps before needing to sit. At this point Hospice suggested he be started on "pain medication - morphine". I did not see any evidence that he was in any kind of pain and so I declined. I later took him off Hospice since they were not helping me deal with things at all. His condition stayed unchanged until about 2 weeks ago when it became apparent he was losing weight and sleeping much more. His muscle twitching has gotten worse despite using medication, Baclofen. And just standing up with two people assisting is much more difficult now. I believe his end is approaching.
    Anyway, I'm not sure why I am posting this now except that I thought it might help me to write it down and share. Thank you all for your kindness and willingness to help others. You may not always know how or how many lives you have touched. I have found this forum to be God sent and invaluable. Thank you all again.
     
  2. Shedrech

    Shedrech Volunteer Moderator

    Dec 15, 2012
    8,056
    Yorkshire
    hello @vmmh
    thank you for the update; a sad situation for you
    I'm glad TP has helped before, and that you thought to return today - someone is always here, so post whenever you feel the need
    best wishes to you both
     
  3. canary

    canary Registered User

    Feb 25, 2014
    10,576
    Female
    South coast
    (((((((((((((((hugs)))))))))))))))))) @vmmh
    Dementia is a roller coaster ride
     
  4. karaokePete

    karaokePete Registered User

    Jul 23, 2017
    4,935
    N Ireland
    Hello @vmmh, please accept my best wishes at this difficult time.

    As has already been said, post whenever you feel the need. The forum members will be here for you.
     
  5. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,602
    Female
    Dundee
    I'm sorry to read of your situation @vmmh. I'm glad youve decided to share here and I hope that helps a little.

    Wishing you strength.
     

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