Hello,
My Mum was recently rushed to hospital and it later turned out she had Pneumonia! She’s been in hospital a few week’s and although a little better not quite out of the woods and struggling with eating and mobility - needs have increased and the hospital were going to discharge early without a package of care in place! I raised my concerns and have now set up an in person meeting with the hospital end of this week.
Mum is still in hospital atm and they won’t discharge without my consent as next-of-kin and that all of us that are LPAs are also not agreeing to discharge as she is not recovered fully - to the point where the physios struggled with her mobility and nurses struggled also!
Contrary to what I’ve been told in the past by social workers, I.e the professional belief that assessments are meant to be paid for if over £23k savings this is not necessarily the case if there are lots of complex needs and this is actually meant to be assessed first on the medical needs - been fighting this for years and hitting a brick wall!
However, I think Mum would be entitled to a 6 wk continuing healthcare package via the NHS but this has not yet been confirmed or in place as an assessment is needed first. Plus, I’ve told the Hospital I won’t be able to cope without something in place due to needs increasing with eating and choking and mobility.
I am usually Mum’s 24/7 carer with an agency filling in ad hoc - as I also have a full time shift job that my employer lets me mainly work from home at their discretion, due to the complex personal circumstances!
I normally have a relative who until recently helped me but he is also elderly and a few week’s ago said he was struggling to cope with Mums mobility. He is my rock but now my only other support is the ad hoc agency who I have to book a fortnight ahead or my young relative who lives the other side of the country!
I’m also meant to be on an overseas trip in less than a month that I pre booked months ago and is non refundable - of course if Mum isn’t better I’ll cancel.
Mum and I are incredibly close and I think of her as my Best friend. I’ve always been an advocate for Mum being independent at home which she has always said is her wish and I want to respect her wishes.
However, my other loved ones think permanent care home and I’m thinking if she gets the nhs package of care for 6 weeks, to try to see if they can implement this as temporary respite to see if her mobility improves?
My fear is, if she is moved straight into permanent care, I feel it’s too late to reverse the decision, whereas if temporary respite first, there’s more flexibility.
Has anyone been in a similar position?
If so, what did you do?
My Mum was recently rushed to hospital and it later turned out she had Pneumonia! She’s been in hospital a few week’s and although a little better not quite out of the woods and struggling with eating and mobility - needs have increased and the hospital were going to discharge early without a package of care in place! I raised my concerns and have now set up an in person meeting with the hospital end of this week.
Mum is still in hospital atm and they won’t discharge without my consent as next-of-kin and that all of us that are LPAs are also not agreeing to discharge as she is not recovered fully - to the point where the physios struggled with her mobility and nurses struggled also!
Contrary to what I’ve been told in the past by social workers, I.e the professional belief that assessments are meant to be paid for if over £23k savings this is not necessarily the case if there are lots of complex needs and this is actually meant to be assessed first on the medical needs - been fighting this for years and hitting a brick wall!
However, I think Mum would be entitled to a 6 wk continuing healthcare package via the NHS but this has not yet been confirmed or in place as an assessment is needed first. Plus, I’ve told the Hospital I won’t be able to cope without something in place due to needs increasing with eating and choking and mobility.
I am usually Mum’s 24/7 carer with an agency filling in ad hoc - as I also have a full time shift job that my employer lets me mainly work from home at their discretion, due to the complex personal circumstances!
I normally have a relative who until recently helped me but he is also elderly and a few week’s ago said he was struggling to cope with Mums mobility. He is my rock but now my only other support is the ad hoc agency who I have to book a fortnight ahead or my young relative who lives the other side of the country!
I’m also meant to be on an overseas trip in less than a month that I pre booked months ago and is non refundable - of course if Mum isn’t better I’ll cancel.
Mum and I are incredibly close and I think of her as my Best friend. I’ve always been an advocate for Mum being independent at home which she has always said is her wish and I want to respect her wishes.
However, my other loved ones think permanent care home and I’m thinking if she gets the nhs package of care for 6 weeks, to try to see if they can implement this as temporary respite to see if her mobility improves?
My fear is, if she is moved straight into permanent care, I feel it’s too late to reverse the decision, whereas if temporary respite first, there’s more flexibility.
Has anyone been in a similar position?
If so, what did you do?
