1. Expert Q&A: Protecting a person with dementia from financial abuse - Weds 26 June, 3:30-4:30 pm

    Financial abuse can have serious consequences for a person with dementia. Find out how to protect a person with dementia from financial abuse.

    Sam, our Knowledge Officer (Legal and Welfare Rights) is our expert on this topic. She will be here to answer your questions on Wednesday 26 June between 3:30 - 4:30 pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

  1. MMT

    MMT Registered User

    Jun 22, 2015
    1
    I look after a friend with PCA She has probably had this for a number of years. Lately it's prob become more evident. She has the usual difficulties re mobility and trouble determining exactly where things are or shd b. She does need constant care. When she started to make obvious jerking movements I found myself unsure of what was going on. I realise now this is part of the symptom but I wonder what other issues I will face which I am still unaware of. Makes me realise I am still naive regarding the gradual changes that occur. It's v harsh and heartbreaking for those still of sound mind. V hard to accept. With my friend she gets v punishing pains that come and go in her legs and in her left arm which she uses less and less. I wonder if this too is part of the illness? Im always trying to make her use her arm fearing if you don't use it U will loose it's use. But then again I am unclear as to whether my best endeavours are floored ? X
     
  2. Beate

    Beate Registered User

    May 21, 2014
    11,496
    Female
    London
    To be honest, I don't know much about PCA and this factsheet doesn't elaborate: http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=135
    However, apparently in the later stages it's comparable to Alzheimer's so you might read up on that. It's important to note though that everyone is different and people will present with different ranges of symptoms. If you are ever unsure about a symptom, best ask the doctor to rule anything else out.
     
  3. CollegeGirl

    CollegeGirl Registered User

    Jan 19, 2011
    9,535
    North East England
    Hello MMT. I'm sorry, I don't know what PCA is, but I just wanted to welcome you to the forum and bump your post up a bit. Hopefully others with more experience and knowledge than me will be along shortly. I think it's wonderful that you are looking after your friend.
     
  4. Beate

    Beate Registered User

    May 21, 2014
    11,496
    Female
    London
    Posterior cortical atrophy, it's a rarer form of dementia.
     
  5. tre

    tre Registered User

    Sep 23, 2008
    1,353
    Herts
    Welcome to Tp. My husband has pca and I have been caring for him since 2008. I would recommend you look at the PCA support group which is run from UCL. The link is

    https://www.ucl.ac.uk/drc/support-groups/PCA-support-group

    There is heaps of info there and we have also a stages of pca document which you may find useful. The group is very friendly and it is such a relief to speak to someone who understands. The main meetings are held in London but there are also regional meetings at other UK locations.

    Tre
     

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