I look after a friend with PCA She has probably had this for a number of years. Lately it's prob become more evident. She has the usual difficulties re mobility and trouble determining exactly where things are or shd b. She does need constant care. When she started to make obvious jerking movements I found myself unsure of what was going on. I realise now this is part of the symptom but I wonder what other issues I will face which I am still unaware of. Makes me realise I am still naive regarding the gradual changes that occur. It's v harsh and heartbreaking for those still of sound mind. V hard to accept. With my friend she gets v punishing pains that come and go in her legs and in her left arm which she uses less and less. I wonder if this too is part of the illness? Im always trying to make her use her arm fearing if you don't use it U will loose it's use. But then again I am unclear as to whether my best endeavours are floored ? X