My mum is 92 and was finally diagnosed last April, just as lockdown here started. She wasn't allowed out for the first few months, but now. even is she could, has no desire to do so. Her mobility is very poor (uses a frame) and she went into hospital just before Christmas as was very breathless and had low blood oxygen. Before she went it she still managed to get up in the morning and dress herself and undress and get herself to bed - now she suddenly can't do anything for herself. She lives with us but in the own "annex" and I have always cooked her meals etc - now she can't even manage to come into the kitchen and make herself a cup of tea. I have to wake her most mornings, it then takes at least an hour to get her up, washed and dressed - some mornings she will let me help, some mornings she won't and it takes forever - I can't leave her as I'm afraid she will fall. Her personal hygiene leaves a lot to be desired, she is incontinent (wears pull up pants) and has to be forced to shower - so most mornings its a wash.... she then shuffles from bed to lounge chair where she collapses into her chair she sits in all day. I can't help but get frustrated and I know I come across as angry with her - It's not her I'm angry with its the disease.
I'm in and out all day getting all her meals, drinks etc through the day - often she falls asleep and I worry she doesn't eat / drink enough, so I have to stand and watch to be sure. She fibs and tells me she gets up and goes to the loo but I know full well she doesn't!
I worry constantly that she doesn't eat and drink enough, gets no exercise or fresh air (won't even go for a wander round the garden), is still really breathless and is basically sleeping all the time... She just seems to be going downhill so very fast its frightening and I hate that I feel I have no control over any of it.
Sorry if this seems a bit of a ramble but it all seems to be happening so fast and there is so little trace of my mum left.
I'm in and out all day getting all her meals, drinks etc through the day - often she falls asleep and I worry she doesn't eat / drink enough, so I have to stand and watch to be sure. She fibs and tells me she gets up and goes to the loo but I know full well she doesn't!
I worry constantly that she doesn't eat and drink enough, gets no exercise or fresh air (won't even go for a wander round the garden), is still really breathless and is basically sleeping all the time... She just seems to be going downhill so very fast its frightening and I hate that I feel I have no control over any of it.
Sorry if this seems a bit of a ramble but it all seems to be happening so fast and there is so little trace of my mum left.