So many of us in the same position, love to you all, it's so difficult. Jjude its been a learning curve for me too. Nitram was very helpful in explaining that the just in case pack is there for the CH to use to administer drugs for agitation and to dry up secretions at end of life. It will save them having to call out a doctor out of hours or when you need them quickly.
The difficulty I have is that we haven't been told whether mum is quite at that point yet. The nurse at the CH says in her opinion she would be eligible for CHC funding for end of life now but as for getting a just in case pack ready, now that mum has been rehydrated and she's not actively dying as I suspect she was last week then I don't think they think it's necessary.
The hospital doctor we saw on the 23rd, a day before she was discharged was very helpful in explaining that mum wouldn't be re admitted if it happened again and that in his opinion it was better for mum to be discharged back to her CH where she wasn't at risk of infection. He was only a young lad, in his 20's I guess but he was passionate about his job as a geriatrician. He said his gold standard of care was based on what he would do for HIS mum. If it wasn't good enough for his mum then it wasn't good enough for anyone else's either. He said all we can do is give her the most comfortable and dignified ending that we can and in his opinion that wouldn't happen in hospital with tubes and machines dragging things out.
He was marvellous, he made it all make sense, even though it was one of the most painful conversations ive ever had.
The difficulty I have is that we haven't been told whether mum is quite at that point yet. The nurse at the CH says in her opinion she would be eligible for CHC funding for end of life now but as for getting a just in case pack ready, now that mum has been rehydrated and she's not actively dying as I suspect she was last week then I don't think they think it's necessary.
The hospital doctor we saw on the 23rd, a day before she was discharged was very helpful in explaining that mum wouldn't be re admitted if it happened again and that in his opinion it was better for mum to be discharged back to her CH where she wasn't at risk of infection. He was only a young lad, in his 20's I guess but he was passionate about his job as a geriatrician. He said his gold standard of care was based on what he would do for HIS mum. If it wasn't good enough for his mum then it wasn't good enough for anyone else's either. He said all we can do is give her the most comfortable and dignified ending that we can and in his opinion that wouldn't happen in hospital with tubes and machines dragging things out.
He was marvellous, he made it all make sense, even though it was one of the most painful conversations ive ever had.