1. Q&A: "Loneliness and isolation" - Tuesday 30 Oct, 2-3pm

    Are you experiencing loneliness and isolation? Do you care for someone with dementia or have dementia yourself? We are here to answer your questions on this emotive topic. Our next expert Q&A will be hosted by Anne from our Helpline team. She will be answering your questions on Tuesday 30 October from 2-3pm. Want to ask questions in advance, or don’t think you can make it? You can either post questions here or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on Tuesday 30th of October from 2-3 pm.

    Pop by and post your questions now and we'll answer them on Tuesday.

I'm new and a bit scared....

Discussion in 'Welcome and how to use Talking Point' started by Morph99, May 31, 2018.

  1. Morph99

    Morph99 New member

    May 31, 2018
    2
    I've never joined a forum and never done social media but I think I'm going to need help! Husband, 59 yrs old diagnosed with Alzheimers a couple of weeks ago. It's taken over a year to get recognised by NHS that he "had a problem" and I am now fighting for answers as to how I get his medication prescribed, what benefits he may be entitled to and how to claim (he was self employed and has no income ), whilst still trying to hold it all together, keep smiling, work full time to keep roof over our heads etc. etc. I'm sure I'm not the only one and would love to hear from others...…………..
     
  2. nae sporran

    nae sporran Volunteer Host

    Oct 29, 2014
    4,754
    Male
    Bristol
    Welcome to TP Morph99. I'm sorry you had such a long battle to get your husband diagnosed with Alzheimer's. You will get plenty of good advice on here.
    I have found the carers support centre https://carers.org to be a great resource for advice on benefits and pointing me towards charities who can help make a claim. AgeUK are also good, they helped OH and me with POA forms. There is also a Dementia Helpline on 0300 222 11 22 run by the Alzheimer's Society.
    I hope one or other of those can help and advise you, but there is always someone on here better informed than I.
     
  3. canary

    canary Registered User

    Feb 25, 2014
    7,194
    Female
    South coast
    Hello @Morph99 and welcome to Talking Point. My OH was diagnosed 2 years ago and I am now 61
    If your husband is still of working age the usual benefits are PIP and ESA - you can claim both and neither of them are means tested.
    If your husband is receiving state pension then he should be able to get Attendance Allowance, which is not means tested.

    There are other means tested benefits, but Im afraid I dont know much about them. I would recommend that you contact someone like Age UK.or Citizens Advice about what you would be eligible for.

    I have taken early retirement and so I am also claiming Carers Allowence, but your husband has to get either PIP or AA before you can claim this.

    Its a very steep leaning curve when someone is first diagnosed and you can end up totally overwhelmed. Do keep posting
     
  4. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    9,362
    Merseyside
  5. Morph99

    Morph99 New member

    May 31, 2018
    2
    Hi many thanks for your support, trying to find the time to contact Citizens Advice is not easy...I have to go in person and they're only open in working hours and you can't seem to pre-book an appointment...…!
     
  6. Fattywatty

    Fattywatty Registered User

    Jun 13, 2016
    31
    I've always found AGE UK extremely helpful and much easier to get hold of. Welcome btw! You'll find lots of help and support on here well done for finding us. Good luck xx
     
  7. Philbo

    Philbo Registered User

    Feb 28, 2017
    476
    Male
    Kent
    Hi Morph99

    Welcome to the forum.

    You don’t say where you’re from but I would search online for dementia support in your location.

    You should find a number of National and local support organisations and as been suggested, Age UK are very helpful.

    Here in East Kent, I was very lucky to stumble across a charitable support organisation - back in Jan 2014 when my wife was diagnosed (it took a year for us too - she is 67 now).

    Their area coordinator spent several hours with us and signposted many avenues for us to seek help. I remember feeling such relief, like being given a huge hug!

    Our local Age UK runs a dementia drop-in coffee event once a month, which is attended by various support groups. You may have one locally so I would urge you to find the time to go, if so, as I am sure you would find it worthwhile.

    Good luck and keep in touch.
    Phil
     
  8. bobmacwos

    bobmacwos Registered User

    Jun 3, 2018
    17
     
  9. bobmacwos

    bobmacwos Registered User

    Jun 3, 2018
    17
    hi morph 99 sorry to hear bout your sad news
    as you are finding on here everyone is of a similar story
    i am 59 also and recently diagnosed with mixed dementia alzheimers and vasculor
    which i have been prescribed mematine for this was done by memory clinic and on going with gp and pharmacy and monitored by memory clinic every few months so you may get same support hopefully
    keep chin up and one day at a time
     

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