I have vascular dementia can somebody help me

Discussion in 'I have dementia' started by black night, Jun 13, 2015.

  1. black night

    black night Registered User

    Sep 26, 2014
    170
    I'm not sure if I'm doing the right thing but if I am chick please could you let me know as now I'm so confused now it's upsetting me so much that and yet again memory team say l don't meet cryterea for xtera help .
     
  2. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Oh Steve have you got admiral nurses where you are? They could liaison with memory team for you or perhaps Theresa could send them an e mail explaining your difficulties? Don't give up as sometimes these things need a bit of time . Always here if you need support :)


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  3. black night

    black night Registered User

    Sep 26, 2014
    170
    Hi chick I havint any contact details for admiral nurses I would love it if you could give me there email address I'm absolutely struggling with my short term memory loss is deminishing every day I rang back memory team and seid how far gone do I have to be before I have more help I just don't know how much longer thay are going to ignore me love you stev and terasaxxx
     
  4. Kevinl

    Kevinl Registered User

    Aug 24, 2013
    4,781
    Salford
  5. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
  6. black night

    black night Registered User

    Sep 26, 2014
    170
    Hi chick I have found out what my dad died of today he had neomonia and other compleacations I feel so sad that he has gone I'm missing him already it's only been since saterday. But he has gone to join my mum and one of my brothers. I'm so down right now I'm devestated I havint greaves for them does that make me cold .I just can't seem to cry I feel terrible about it its made my depression and angsity attacks worse I just need a cuddle my sister is with us I havint seen her yet though she is getting organised for funeral service not shore when maybe a weeks time. So sad
     
  7. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Oh Steve my heart goes out to you and your family . I guess you are still in shock bless . So glad your sister is with you too and you can be there for one another and share your grief . My thoughts are with you all . Wishing you strength for the coming days x


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  8. Oxy

    Oxy Registered User

    Jul 19, 2014
    957
    Steve, I am so sorry to read of your sad loss. I wish you and your family only strength for this difficult time. You are grieving and please do not for one moment think you are cold. As Chick said, you are in shock and grief does not necessarily mean crying. Grief is like a virus, it needs to take its course and can take time to go through the stages. When you are ready, emotions may show and allow yourself this but don't worry. I am pleased that your sister is with you and your wife. Only good wishes to you all, Steve.
     
  9. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,586
    Female
    Dundee
    I'm so sorry to read about your dad. Sending my condolences. Thinking of you. x
     
  10. black night

    black night Registered User

    Sep 26, 2014
    170
    Thank you oxy Friday is getting closer my depression and angsity are getting me down but I'm trying to keep it together I'm going on my wendsday morning walk with my dementia freinds. We are going to our Eden progect for a sensory trust creative spaces walk. I know thay will look after me and terasa wish you well to by by for now .
     
  11. black night

    black night Registered User

    Sep 26, 2014
    170
    Thank you Izzy for your message we do appreciate it I'm so glad there are people like you who understand what I'm going through. I don't know what I will be like on the day my depression and angsity are getting worse as the time goes on I will try and keep it together thank you for your message by by for now
     
  12. edwardbs

    edwardbs Registered User

    Jul 30, 2014
    19
    Lichfield Staffs
    what is an admiral nurse?

     
  13. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,586
    Female
    Dundee
     
  14. black night

    black night Registered User

    Sep 26, 2014
    170
    I have vascular dementia can somebody help me yes I must agree with you

    Thank you Izzy for your message it was a sad day on Friday I miss him already my family are gone back to other parts of the uk it's a undiscribible feeling num now .il never see my parents anymore it was a good send off for dad .He had done Williams going in the church and country roads coming out of the church he was a big country western fan .
     
  15. black night

    black night Registered User

    Sep 26, 2014
    170
    I have vascular dementia can somebody help me yes I must agree with you

     
  16. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
     
  17. black night

    black night Registered User

    Sep 26, 2014
    170
    I have vascular dementia can somebody help me yes I must agree with you

    Hi chick it's been about a week since I've lost my dad I'm feeling sad but I'm trying to let me feel a little better it's hard there was lots of people at the funeral. I've been to the doctors and nurse tryed to get blood out of me Thursday morning I've got to go and try again .It's to find out what type of artheritis it is at the minite my left hand is curling up like a fist I can't straighten my hand my ankles and knees are swaulen to I'm on liquid morfine for the pain .so my GP has told me I can't get anymore help with my memory loss we don't have admiril nurses in cornwall terasa is getting so frustrated with me I'm repeating myself and doing strange things I'm falling over my short term memory loss is deminishing yet no more help I'm going for pip benifit for the Third time having help from care support worker she will take us and push for top benifits if thay lie again she is going to take it to the hightest apeal session in uk love u lots chick stephen and terasa xxxxxxxx :confused:
     
  18. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Hello Steve , I am so very sorry you are having such a terrible time at the moment and my heart goes out to you and Theresa . Unfortunately there is only so much medication can do . My husbands short term memory is very bad too but we try and concentrate on the many things we still can do . It must be so difficult with grief and constant worry but we are all here for you with support and a listening ear. Perhaps you could talk to the Alzheimer's society ? Have you and Theresa had a carers assessment yet it can be organised by phoning social services . Have you got Crossroads in Cornwall as they are a charity carer organisation who will come out and speak with you and can offer practical advise and help. Wishing you all the best Steve ( hugs to you and Theresa xx


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  19. Tin

    Tin Registered User

    May 18, 2014
    4,826
    UK
    Black knight really feeling for you at the moment, you and your wife seem to be going through an awful lot. Have you ever spoken to CAB? They could help you with all the form filling, appeals, making contact with social services and councils. I am hoping that things improve for you both very soon.
     

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