i have just spent 2 hours telling some of my experiences with fld

bel

Registered User
Apr 26, 2006
757
coventry
lovelly guy doing research to help others understand more
and maybe help others along the line
i knew it would hurt re living start or illness 10 - 15 years ago
but i did not crack up till he said at the end what do you think about the future
i could hardly get the words out
there is no future i said a bit more but cant repeat it now as it hurts like hell
i said i will have to stop now --i just hope it helps some one
love bel x
 

Grannie G

Volunteer Moderator
Apr 3, 2006
70,336
Kent
Well done bel.

Even though it was upsetting, I bet it helped to have someone to talk to who really wanted to know.

Love xx
 

bel

Registered User
Apr 26, 2006
757
coventry
it did help but i need a bit of time to get my head around it

your right sylvi it did help
it alowed me to say things i knew but could not voice to any one for fear of hurting them only thing is now i have said them it is also making me realise these things are real i cant put it right
nicer side on leaving i said thanks a lot --p and put my hand out he said bless him i want a hug --
so much compasion
love bel x
 

Taffy

Registered User
Apr 15, 2007
1,314
bel said:
lovelly guy doing research to help others understand more
and maybe help others along the line
Dear Bel,

What a caring person you are and I am sure that every bit of information gathered helps. He gave you a hug because you deserve it. Take Care Taffy.
 

Skye

Registered User
Aug 29, 2006
17,000
SW Scotland
Well done Bel! We all need to talk about our experiences as much as possible, it's the only way to get people to take notice.

Was it for the local paper?
 

elaineo2

Registered User
Jul 6, 2007
945
leigh lancashire
Dear bel.Well done.I am so unsure of talking about this disease and my father other than to TP.I don't think i could cope with the reactions from outsiders.You have proven it can be done,i know we are not all alike,i am a mouse when it comes to it.love elaine.well done again.x