Thank you so much for taking the time to message. It really helps hearing others experiences. The memory clinic said there is nothing more to do as he is under the community metal health team, specialist team for dementia. They have provided a short term support worker, takes him for coffee once a week for couple hours. Still waiting for social services to deliver their care package, of support worker 3 times week.
I just don’t feel he is being helped or protected enough. Since my original post he is more vulnerable and struggles massively with social skills, rules, communication, like he has no filter.
Yesterday a friend saw him being told to leave the local supermarket and banned. No Ionger aloud in. He had been pinching chocolate. Following people around the store. He got angry apparently when told not allowed in again. 2 mums from school work there and it was another mum who saw him. Makes me feel really worried as it’s only a small town. He would never tell me. I find the reality out through chance and others.
He is now banned from the two major supermarkets in our town.
He is so vulnerable, all he has to do in a day is go walking but that basically means wondering around the shops, asking people or things for free, really strange socially difficult behaviours.
He has been referred to safeguarding as he was falling for scams on his phone. I have found 30 gift cards (Amazon, etc) I think people promise him money.
I just want him to listen to me, to accept my help, to let me look after him but his behaviours are just so difficult to keep on top of and I feel the children and myself are at risk by default. I found an application for a credit card, the pin arrived in the post. I’ve spent the last year getting serveral large loans written off.
His deterioration is rapid. I am scared I’m missing opportunities, already have really, of doing essential bereavement type stuff, like memories for the kids, getting letters written for the children I don’t know really, just things. We’ve lost him before we realised, so much I would have done if I had known. From simple things like a meal out together to a weekend away. Both those are extremely difficult now.
Long post I’m sorry.