Hi I am new to this and scared!

Discussion in 'I care for a person with dementia' started by JLM, Oct 12, 2015.

  1. JLM

    JLM Registered User

    Oct 11, 2015
    10
    Not even sure I should be doing this but have read the posts and they are really helpful.
    My mam has just been diagnosed with Alzheimer's and Vascular dementia which they think has been happening for 3 to 4 years. She still knows who we all are but her body seems to be failing quicker than her mind. Big blow was consultant informed us on Friday that on top of this she also has Hydrocepalus which is the fluid from the spine leaking to the qtr of the brain that is still ok. They won't do the opp as they think it won't work because of age complications etc and mam doesn't want the opp also. Anybody know anything more about this?? Still in shock at min.
     
  2. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    10,303
    Merseyside
    Welcome to TP :)

    I'm sure someone will be able to help you.
     
  3. JLM

    JLM Registered User

    Oct 11, 2015
    10
    Thanku!

    Thanks not sure if I've got the hang of this?:confused:
     
  4. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    10,303
    Merseyside
    You're doing fine.
     
  5. disi

    disi Registered User

    Sending you and your family a special hug xxx
     
  6. JLM

    JLM Registered User

    Oct 11, 2015
    10
    Thank you that means a lot:) xxx
     
  7. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,282
    Female
    near Folkestone
    Have no advice either but wanted to say welcome :) hugs to you xxx


    Sent from my iPhone using Talking Point
     
  8. grove

    grove Registered User

    Aug 24, 2010
    7,723
    North Yorkshire
    Hello & Welcome..................

    JLM ( my real name ! ) from me also too T P & hope you find it useful & friendly as I have done



    Sorry no real advice so am just sending you much Love , Support & BIG HUGS


    Thinking of you


    Love Grove X X
     
  9. JLM

    JLM Registered User

    Oct 11, 2015
    10
    Phew TP easier than I thought!

    Thank you:)
     
  10. JLM

    JLM Registered User

    Oct 11, 2015
    10
    Than you:)
     
  11. grove

    grove Registered User

    Aug 24, 2010
    7,723
    North Yorkshire
    You are very welcome JLM & hope you have found some support , advice & you feel a little better in joining TP ?


    Wishing you strength in the days & weeks too come


    Love Grove x x
     
  12. JLM

    JLM Registered User

    Oct 11, 2015
    10
    I feel so much better for joining but frustrated!! As everyone will feel I know. Sorry just want answers I can't get! Not from TP just answers!!!!
     
  13. JLM

    JLM Registered User

    Oct 11, 2015
    10
    Sorry

    So confused:(
     
  14. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    10,303
    Merseyside
    There's nothing to be sorry for. What you're feeling is normal.
     
  15. sleepless

    sleepless Registered User

    Feb 19, 2010
    3,223
    Female
    The Sweet North
    Sorry you haven't had any replies specifically about hydrocephalus, JLM, but I don't remember seeing any mention on here before. Maybe someone will see your thread who has some experience.
    Could you perhaps ring the consultant's secretary and explain that you would like more information?
    Meanwhile, welcome.
     
  16. JLM

    JLM Registered User

    Oct 11, 2015
    10
    Thank u so much!! U have just confirmed what we were thinking! Yes we have an we have an appointment early November. No one seems to know much about this but what ever detail I get I will post in case anyone else wants to know. Thanks :):(
     

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