Hi am new to T.P hope am doing this right

[helmo]

My dad was diagnosed at 55 he's now 67 and what a road we have been on he was diagnosed with lewie bodies Alzheimer's and now he has Alzheimer's , epilepsy , and Parkinson's and he's had three stokes its been a hard 12 years and we've had to fight every step of the way for the medication my dad needed but the doctor hasn't always agreed my mum is a nurse and has delt with all of dads ailments in other people so knew what signs to look for when dad was diagnosed with Parkinson's 18 months ago she had been telling the GP for over twelve months dad had Parkinson's and he just dismissed her finally he got her a appointment with a specialist just to shut her up basically but the specialist agreed with mum 100% and dad was put on the meds he's since started walking and talking again witch we thought would never happen some times you need to fight to get what you need dad is doing great at the moment we've always cared for him our selfs I have him two nights a week so dose my sister and mum has him the rest it just get so hard some times I love my dad so much and wouldn't have it any other way but AD is so cruel it kills me watching dad getting worse dad before being diagnosed with Parkinson's
Dad now on the Parkinson's. meds doing great sorry for going on just that friends are always there but don't quite understand ;0) xxx

 

[Noorza]

I think it's fantastic how your family has pulled together and all taken a share of what is, in all honesty a burden, but one we do because we love them.

Your love for your Dad shines through. Hi and welcome, you'll meet a lot of great people on this site. It's been a lifeline for me.

 

[Izzy]

Hi Helmo and welcome to TP. I'm so sorry to read your story and how hard your family has had to fight for your dad. The photo of your dad after getting the meds is lovely. Such a difference. I do hope you visit TP often. You will get lots of help, support and friendship here. Take care. x

 

[helmo]

Thank you so much for the warm welcome and it makes all the difference having some one to talk to I will visit often and hopefully I can help others as well ;0) xxx

 

[jeany123]

Hello helmo and welcome to TP , you have come to the right place, I hope it helps that we understand on here,

Best wishes Jeany x

 

[CeliaW]

Hello Helmo - welcome to TP and I hope you find support here for you and your family. It sounds as though you have all been working together really well and, sadly, that isn't always the case in families.

I do feel for your Mum having to fight to get her instincts about your Dads Parkinsons recognised. I am an ex nurse and, whilst we certainly don't know everything, we often seem to have developed an innate awareness of what an overall picture of someone's symptoms can mean. Kudos to your Mum for persisting and I am glad the meds are helping improve the quality of your Dad's life and therefore life for all of you.

Do keep posting and reading - its amazing what gets posted on here and the wealth of knowledge that is available. There is also lots of understanding too as we have all had to deal with the fallout from this evil disease.

And if you are feeling a bit low, do come and join in and read threads in the Tea Room Forum - there are jokes and interesting stories and oh.. all sorts. All of which can provide a welcome break from stresses at times.

Take care

Celia

 

[helmo]

Ah thank
You so much for all your lovely comments and support mean so much the kindness of strangers I look forward to reading your lovely stories and hope I can do the same for some one elc love and hugs xx