My OH had a diagnosis 4 years ago and since has declined steadily until last year when decline became rapid and by May I was besides myself with exhaustion and found it was unsafe for him in our home, he has small brain bleeds as a result of the disease causing dementia. Luckily I found a nursing home nearby. It feels very lonely without him, I feel guilty and strangely drawn to thinking about him and needing to visit for ME, not so much for him as he's in his own world. Although he sometimes says he's not happy and I can see he doesn't like being in the home. Doesn't like not being in his own home. Although he can't articulate this. I don't mention home. Anyway, this feels like another torture. It's bad enough having to cope with all that I have until this point, but there's no real respite now either. It is such a long and lonely road.
He's estranged from all his family and now I am from most of mine. Friends have stepped back and gradually we have had to manage more and more on our own. On my own. How long will this last? I don' know. Will it take all our savings and mean I have to sell the house? I hope not. Luckily I have LPA so have separated our finances so at least, have my own. It's very hard to lose control and at the same time, a huge relief.
How to cope? Anyone else have this experience?
He's estranged from all his family and now I am from most of mine. Friends have stepped back and gradually we have had to manage more and more on our own. On my own. How long will this last? I don' know. Will it take all our savings and mean I have to sell the house? I hope not. Luckily I have LPA so have separated our finances so at least, have my own. It's very hard to lose control and at the same time, a huge relief.
How to cope? Anyone else have this experience?