Primary Progressive Aphasia
Hello everyone,
Just joined and wish to introduce myself.
My name is Peter, and my wife Doreen, was diagnosed with PPA, which is the communication variant of Fronto Temporal Dementia, at 55 years of age, in 2002.
She progresses very slowly, and is now virtually mute!
I am a member of the Pick's Disease support Group, and assist the UK North West Regional PDSG advisor, in running a face to face support group, at the NeuroSupport Centre, in Norton Street, Liverpool. We meet every 2 months.
I am also the Administrator/Moderator of
www.ftdsupportforum.com
FTD Support Forum is a forum which support FTD Carers and sufferers world wide. The forum was conceived in January 2008, after involvement with Yahoo Forums, was found to limit the needs of the membership.
We now have 1370 members worldwide,
and growing daily, with 17 Moderators. 2 from the UK, 1 from Spain, 1 from NZ, 1 Australian and the remainder from the US.
We regard the security of our members highly, and do everything to ensure the safety of their personal information.
The forum is moderated virtually 24/7.
We have 40 sub-forums, covering all aspects of FTD, including stages, benefit advice, "what to tell the children!, incontinences issues, driving, and even a humorous section.
The value of Alzheimer's Talking Point and FTD Support Forum cannot be underestimated, and I well remember the feeling of isolation I felt when my wife was diagnosed with PPA remains with me still. FTD Forum helped me overcome that feeling of desperation, and isolation.
It is good to talk to people who actually understand what caring for a dementia sufferer involves.
I look forward to being an active member of "Talking Point", and do hope you don't mind me extending the invitation to the FTD Sufferers and carers.
Take care,
Peter.