My Mum finally escaped her AZ cage on May 10th, which must be about 9 yrs now after she was diagnosed but maybe 12yrs since we first realised all was not right with her.
Despite knowing that it would get the better of her in the end, and the fact she had gone before that in character, nothing had prepared me for her not actually being there. I'm not religious, but I do feel she has gone to a better place, and finally has some peace right now.
What I has found really helpful, is that about 2 yrs ago I started to go thru all old photo albums, as my parents have so many. Each time I'd go to their house I would find more, and to see her in the days before the AZ mask shows in them is just magical.
I do feel immensely sad that the clarity of my memory is awful and i have problems recalling specific moments with her, but the aura she had was just one of happiness and love.
I didn't post much on the board as i used to sit here in tears reading thru the stories, too close to home for me, but it is wonderful that those who are able to can find help and support from everyone else affected by this terrible thing.
Despite knowing that it would get the better of her in the end, and the fact she had gone before that in character, nothing had prepared me for her not actually being there. I'm not religious, but I do feel she has gone to a better place, and finally has some peace right now.
What I has found really helpful, is that about 2 yrs ago I started to go thru all old photo albums, as my parents have so many. Each time I'd go to their house I would find more, and to see her in the days before the AZ mask shows in them is just magical.
I do feel immensely sad that the clarity of my memory is awful and i have problems recalling specific moments with her, but the aura she had was just one of happiness and love.
I didn't post much on the board as i used to sit here in tears reading thru the stories, too close to home for me, but it is wonderful that those who are able to can find help and support from everyone else affected by this terrible thing.