Hi
My mum was diagnosed about 6 years ago. She's now 61. She's single and has been cared for at home, now by 4 carers who look after her 24/7. She is doubly incontinent, can't speak, feed herself and mobility is getting worse and worse.
I've been as positive as possible throughout. Myself and my husband moved from London to manage her care. We now have two small children. Because we live somewhere pretty rural now, I can't get a decent job and my husband works from home. And basically we aren't living where we would like to build a future.
I feel now that things have to change. And i feel really depressed about that. I feel like we need to alter our priorities and look to the future. I'm stressed so much with staff issues and mum's health issues and feel like i'm being pulled in every direction. I believe that my family and I need to move and if we do i'd like to take mum with us but she'd have to go into a home.
I feel very torn about this. In some ways a home may be good because i can just spend time with mum and not have to do all the other thingsthat go with keeping her at home - shopping, sorting out staff, DIY, gardening etc. But on the other hand mum's carers are amazing and I know she'll get no better care.
If mum went into a nursing home would they then make all decisions about medication and feeding and things like that? I've been looking after that side of things for so long it would seem wrong for others to take over. i have a million other questions.
I just would like to hear anyone's opinions on all of this. Can a home be OK? Will i be able to find a truly caring and home environment for my mum?
Any advice would be good
K x
My mum was diagnosed about 6 years ago. She's now 61. She's single and has been cared for at home, now by 4 carers who look after her 24/7. She is doubly incontinent, can't speak, feed herself and mobility is getting worse and worse.
I've been as positive as possible throughout. Myself and my husband moved from London to manage her care. We now have two small children. Because we live somewhere pretty rural now, I can't get a decent job and my husband works from home. And basically we aren't living where we would like to build a future.
I feel now that things have to change. And i feel really depressed about that. I feel like we need to alter our priorities and look to the future. I'm stressed so much with staff issues and mum's health issues and feel like i'm being pulled in every direction. I believe that my family and I need to move and if we do i'd like to take mum with us but she'd have to go into a home.
I feel very torn about this. In some ways a home may be good because i can just spend time with mum and not have to do all the other thingsthat go with keeping her at home - shopping, sorting out staff, DIY, gardening etc. But on the other hand mum's carers are amazing and I know she'll get no better care.
If mum went into a nursing home would they then make all decisions about medication and feeding and things like that? I've been looking after that side of things for so long it would seem wrong for others to take over. i have a million other questions.
I just would like to hear anyone's opinions on all of this. Can a home be OK? Will i be able to find a truly caring and home environment for my mum?
Any advice would be good
K x