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explaining alzheimers to children

Discussion in 'I care for a person with dementia' started by st4cy, Feb 27, 2015.

  1. st4cy

    st4cy Registered User

    Feb 25, 2015
    9
    My grandad was diagnosed with early onset back in 2009. My eldest daughter was born in 2006, so she does remember him minimally before diagnosis.
    His dementia seemed to progress in a way that was easy to explain to my children up to this point. He was just grandad mike, he was a bit forgetful and sometimes did things they found quite funny. He had a seizure at Christmas which has accelerated his dementia. My children are 9,7 and 3. They absolutely adore their grandad, I think the time has come now where they need a little more information. Especially my eldest two. Can anyone recommend some children's books that might help with this?

    Thanks
     
  2. jeany123

    jeany123 Registered User

    Mar 24, 2012
    19,049
    Durham
  3. henfenywfach

    henfenywfach Registered User

    May 23, 2013
    333
    rct
    Hi!..
    I am an unpaid carer for my dad who has dementia and my dad has been my mums carer for years...i suppose in some way i was a young carer. My dad bless him wasnt very organised and needed help with some things.

    When i spoke as a carer of dementia to a large group of student nurses voluntarily..i was lucky enough to have the chance to watch a young carers video!...i must admit to feeling proud of them...angry they were under so much pressure...concerned society couldnt see their education could be affected.

    I then went on to do my talk on carers of parents with dementia..and took the opportunity to ask everyone to recognise that carers come in all shapes and sizes..and ages...

    Its important that we recognise these things..and that young carers have the opportunity to be young and carers with support.

    I take my hat off to all carers like myself..and especially young and young adult carers ..that save the goverment billions. I salute you all.

    There should be a dedicated national young carers day!..

    Best wishes


    Sent from my GT-I9505 using Talking Point mobile app
     
  4. henfenywfach

    henfenywfach Registered User

    May 23, 2013
    333
    rct
    Hi!..other than the factsheets available..i can say that under the dementia friends .org.uk which is a social active movement..there is information for children of all ages...if you go online and look for your reginal dementia friends volunteer officer ..they can either help you become a dementia friend..or advise you where to find a session with a champion locally that has access to information session for children..its a well worthwhile session..and also being present with all ages..to help create dementia friendly communities!
    Best wishes

    Sent from my GT-I9505 using Talking Point mobile app
     
  5. henfenywfach

    henfenywfach Registered User

    May 23, 2013
    333
    rct
    Dont know if its my app but ive posted two replies...from two different comments...they both appeared on same page!!! Dont know why..oops!!!

    Sent from my GT-I9505 using Talking Point mobile app
     
  6. st4cy

    st4cy Registered User

    Feb 25, 2015
    9
    #6 st4cy, Feb 27, 2015
    Last edited: Feb 27, 2015
    Hi,
    I'm doing a dementia champion training session on the 13th. Maybe they'll give some advice then? I really hope so. Thanks everyone for the advice xx
     

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