You could try a concise factual email to either the relevant hospital trust or CCG
@DesperateofDevon
We have sent every week a concise factual email to the hospital , & 3 requesting help to PALs
PALS got us the End of Life diagnosis now we are on the fourth time of being told by nurse that Mums not end of life!
Denied access to notes as LPA health & welfare
So now having to go through freedom of information act process - mum will be dead before we get it.
Rang office of public guardian to enquire about our legal rights to access ward notes, food diary, medication changes etc - we have the same rights as the patient / donor.
Sadly hospital think otherwise.
We have rung to try & talk to the ward - no one available & no ring backs
We have emailed the ward with questions cc to the Admiral nurse
The Admiral nurse can’t get anywhere either !
Rang CHC office & hospital / Ward haven’t filed a CHC for Mum . Only one on record was done weeks before Mum went into hospital & Mum was borderline then & we were advised to appeal at the assessment by the assessor.
Mum needs 24/7 nursing care as she’s at end of life & death could be at any point soon as stated by 3 consultants & yes we have asked to have written confirmation of the consultants notes . On Thursday we were told over the phone ( no face to face ) that life isn’t sustainable & Mums very frail .
The head of Elder Care won’t take our calls , never has . Mums consultant hasn’t revised his opinion since she was admitted - life expectancy of no more than 3 months on admittance to hospital .
Palliative care team haven’t seen mum, & the pain patch nurses decided made Mum sleepy !? As Mums non responsive I’m not sure how they know … but they won’t tell me that either.
The placement I found for mum were told on Friday by the same nurse Mum was able to wash / dress/ feed herself & was mobile …..
The placement having been sent a copy of Mums care plan when she was at home & the contradictory email the ward sent cannot believe the disparity … infact both placement & PALs are wondering if they even know who mum is?
CQC investigation - not what we want but if that’s what it takes ..
The Dr who rang us on Thursday was shocked at the lack of humanity shown by Ward staff , the bullying techniques & lack of duty of care.
It’s been a catalogue of disasters from the beginning
Mum moved wards & then hospital without us knowing
O/T assessment not done as Mum unresponsive / not waking up but O/T & social services said she was medically fit for discharge back home to package of care of 4 visits a day .
No 24 Hr assessment done
No assessment by Complex Care & Dementia Team
Social services said we the family were stopping Mum being discharged. Yes because Mums needs are greater than the package of care in place.
C/T scan never done as Mum too aggressive & distressed - the reason why ambulance crew insisted on taking Mum in was because of head injury .
MDT & social services had meeting without us knowing & decided package of care was sufficient . We have never been given the minutes of this meeting or any information as to how they arrived at this decision . Yes we have emailed & rung to ask to be updated.
Ward gave meds against Mums wishes & directive - Respect & DNR with Mum in hospital & on ward.
The Ward have told us that the placement don’t do nursing care in an email to us - mean while they told the placement that Mum was stacking patients even though she’s bed bound & not weight baring.
The Ward on receiving our LPA discussed over the phone another patient believing it to be my mother 3 times I stated my mums name & queried what I was being told.
D2A beds are for residential care re-enablement before you go back home they do not provide nursing care. D2A beds are not for palliative care or end of life.
The Ward in an email stated Mum needs palliative nursing care & residential care cannot meet her needs.
So we the family do not understand -
- why the consultants diagnosis is under dispute from a ward manager & nurse.
- why say CH C fast track refused when it’s never been submitted.
- why we can’t make an appointment to visit because the ward managers on holiday
- why a D2A bed in a care home is being offered when the ward in an email state Palliative nursing care is needed.
- why is any of this happening & who will sort it out ?