1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    Does anyone else have a problem?
    2 weeks ago we had a new mattress to take care of pressure sore on his bum. After three days I finally got the DN to come and check it was set up correctly- one of the carers and I set it up because in spite of telling the DN exactly when it was arriving they didn't respond to my calls. So when they did check it they said we will pop in next week and check how things are. So I got a phone call , not a visit and said there were red patches coming and going so I wasn't' t sure. Are the carers worried-they are as unsure as I am. Oh well keep an eye on it and call us if you are worried.
    This am carers and I were concerned that there is an expanding purple patch where the sore is. So I phoned, could you come and check please. That was at 9am, so far no response at all. This happens every time - I thought the emphasis was on supporting keeping people at home?
    Is it just me ? I finish up confined to the house for days, can't even take the dog out. But it keeps on happening
    Not only do I have problems physically turning oh but he resists anything he doesn't want to do because he doesn't remember why it's important. Sound familiar? There is equipment that can help but how am I supposed to access it without the DNs help? I feel a complaint coming on!!!
     
  2. Lindy50

    Lindy50 Registered User

    Dec 11, 2013
    5,302
    Cotswolds
    No-one could blame you for complaining - this is shoddy service at best, neglect at worst, imo :mad:
     
  3. lexy

    lexy Registered User

    Nov 24, 2013
    565
    #3 lexy, Jan 12, 2015
    Last edited: Apr 11, 2015
    deleted
     
  4. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    I am aware how potentially serious this is left but it seems that because it's 'only'a stage one they can hold back until it is an open sore and needs dressing.
    If I don' t get any responses tomorrow I will get the gp out and then I WILL start complaining
     
  5. marionq

    marionq Registered User

    Apr 24, 2013
    5,860
    Female
    Scotland
    #5 marionq, Jan 12, 2015
    Last edited: Jan 13, 2015
    Has there been a severe cutback in district nurses? My sister had major heart surgery before Christmas which was a success. The aftercare has been useless with a visit from DN then from two student nurses. Sister is now back in hospital with a Surgical Site Infection and very ill. This has happened in an area of Scotland with a very good NHS reputation. What is going on?


    Edited today as I spoke with my sister who is going to be in for 6 to 8'weeks to cure this infection which should never have arisen or have been nipped in the bud by proper after care. High expense to the NHS. Thank God though she should be OK.
     
  6. PeggySmith

    PeggySmith Registered User

    Apr 16, 2012
    1,685
    BANES
    I think it depends on where you live because some people posting on here have had a very good service. Ours was rubbish. There has been a huge reduction in numbers nationally. 12,000 down to 5,000? Sorry, I can never remember numbers.
     
  7. jeany123

    jeany123 Registered User

    Mar 24, 2012
    19,049
    Durham
    I must say ours have been very good and always say if I am worried about husbands legs blistering or sores breaking down to phone them and they always come out,
     
  8. lexy

    lexy Registered User

    Nov 24, 2013
    565
    #8 lexy, Jan 12, 2015
    Last edited: Apr 11, 2015
    deleted
     
  9. Chuggalug

    Chuggalug Registered User

    Mar 24, 2014
    8,007
    Norfolk
    Someone was supposed to come and check my hubby's skin weeks ago, but never turned up. I reported it, and still, nothing. Ho-hum, I thought. They still don't care! and carried on regardless. What a nightmare, eh? It'll come to those who turn their backs, and then, they'll be put to it, trying to fight through a system that doesn't work.

    Find whatever info you can on the Internet, and that old saying: If you want a good job doing, do it yourself - has saved me many sleepless nights.
     
  10. Chuggalug

    Chuggalug Registered User

    Mar 24, 2014
    8,007
    Norfolk
    Lexy, we knew someone years ago who was left with an awful sore on his lower spine. It got so bad because of clueless people that he ended up taking them to court. That's what needs to be threatened, in these cases; the carer threatening with legal action if nothing ia done if it needs to be done, and people can't be bothered. I'd fully support that. It's called getting justice.
     
  11. lexy

    lexy Registered User

    Nov 24, 2013
    565
    #11 lexy, Jan 12, 2015
    Last edited: Apr 11, 2015
    deleted
     
  12. truth24

    truth24 Registered User

    Oct 13, 2013
    5,726
    North Somerset
    So sorry to read about the lack of care. Our DNs work thru the GP's surgery. Can you make a phone appt with him and see if he can 'speed them along'. A polite way of putting it.

    Sent from my GT-N5110
     
  13. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    ,better news. Nurse came late this pm, so only a short while confined to the house. They are ordering a ToTo turning device which will turn him regularly and take the worry of turning him off me. But why does it have to be so hard, over a year its taken to get the correct equipment in place and its not for want of trying. Anyway I hope all goes well and we get no more skin problems.

    Sent from my Hudl HT7S3 using Talking Point mobile app
     
  14. garnuft

    garnuft Registered User

    Sep 7, 2012
    6,588
    Oh, fingers crossed Bemused.
    Everything is a struggle isn't it?

    I was captured on phone by a speech and language therapist this morning, who saw son in ...September? brought a book with sticky symbols for him to 'learn' :confused: about time, in an attempt to 'manage' his anxiety.

    Haven't seen the colour of her since September and he put all the signs in a pringle tube and deposited poo on the top, like butter sealing a pate... but she rang for an update on how 'well' he was doing.

    I was fighting to get him out for an appointment with the nurse at the time so I'm afraid instead of the pat on the back and the thanks she was expecting, I told her it had all been a waste of my time, son's time and precious resources.

    Took the wind RIGHT out of her sails.
    Cheered me up, anyway. :)

    Hope you don't have to wait too long for the 'cavalry'. x
     
  15. esmeralda

    esmeralda Registered User

    Nov 27, 2014
    3,072
    Devon
    Love your sense of humour Garnuft. I used to work with children with disabilities and facilitated a group for carers. The funniest group of women I've ever come across. I don't know how they/you do it but I try to take it as an inspiration.
     
  16. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    Gwen how do you do it? Laugh as well. It should not be like this for anyone.
    Respect dear lady

    Sent from my Hudl HT7S3 using Talking Point mobile app
     
  17. Chuggalug

    Chuggalug Registered User

    Mar 24, 2014
    8,007
    Norfolk
    That's just how everything got me in the end. No fight left. It's why I go it alone, now, as there are too many untrained people here. Even in hospital, they don't want to know any more about the dementia. I got to the point, long ago when I just said to myself: Enough. I have worked in a nursing home before, and know what to look for. If anything like a sore develops, I'll ring the emergency services.
     
  18. jennypie

    jennypie Registered User

    Jan 5, 2014
    126
    North yorkshire
    Oh dear Bemused I'm so sorry you have had a bad experience with your district nurse this is very close to me as I am a district nurse also a care for my partner who has Alzheimers as a dn our priority is to prevent pressure sores and the treatment you have had is totally unacceptable and hopefully never happens again. In my area you would of had a visit to check the mattress was in place and working ASAP as in the same day and any reports of skin deterioration the same so I am very surprised!
     
  19. ASH74

    ASH74 Registered User

    May 18, 2014
    295
    We had to push the GP to get FIL DN services but once in they provided excellent holistic care .......it used amuse my FIL greatly that they always checked his bottom (for pressure marks) he always commented "it's me foot that's sore" he then took to dropping his trousers as soon as the nurse was in the door! Unfortunately with me standing there on more than one occasion!


    Sent from my iPhone using Talking Point
     
  20. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    Jennypie thank you for the other side of the situation. I have to say I was surprised to have such poor response from the DNs. I know they have a zero policy in this area on pressure sores. In fairness I have learned recently that they have been 'streamlined' with a lot of moving around so I am hoping it is something that will disappear.

    Sent from my Hudl HT7S3 using Talking Point mobile app
     

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