Wishing a peaceful day to all sufferers and carers alike
Oh Sue! As always you are an example to us all.
Wishing a peaceful day to all sufferers and carers alike
sometimes posters respond to a particular post - which is fair enough - we can't always be aware of everyone's background and back story - and sometimes words don't seem to say what we want them toI am upset that anyone should call stanleypj 'ignorant' or offensive, neither term belongs to the person I have got to know a little whilst writing on this forum.
Personally, I so appreciate all the posts on this thread and in this section of the forum - I try so hard to come to terms with my dad's situation - I know I make mistakes - I know I say and write things that may sound wrong - I try to understand but know I will never completely comprehend - so I'm very grateful for all the insight you offer so generouslyI hope many remain 'ignorant' of the experience of this disease but am grateful for their compassion, reassurance, support and valiant attempts to understand how the lives of sufferers are affected.
This is a very special forum, all members are dementia sufferers, or carers. No carer, on this forum, would ever belittle what a sufferer goes through. In most cases we are talking about much loved relatives here. Our sympathy and concern is all pervasive.
I agree so much gringo and shedrech - thanks so much Sue J.
To recap, aprilbday is someone who has been told she has dementia but whose scan showed nothing to allow her to receive a proper, more specific diagnosis. My wife had that same experience and I had been looking after her for nearly a decade when her dementia was progressing before she got a supposedly more precise diagnosis. During that time I tried to concentrate on whatever positives I could find and encouraged her to do the same. The leading expert who we were seeing encouraged that. And I still do it, even though she scarcely talks now, is bed/ wheelchair bound, and doubly incontinent. We have been through some heart-rending times and I'm now far more aware of what Sue is missing in life than she is. So the idea that I'm belittling what people with dementia are living with is nowhere near the truth.
I've had another look at april's replies and I don't think they suggest that she was offended by what I wrote. I have to accept that some other members have been offended and, as I have said, I'm very sorry about that.
Hi Wayne
Thanks for seeing the humor in what was written. Having a sense of humor is critical.
I am sorry to hear about your suffering. Big boys do cry and should cry! That's what tears are for-to cry! What on earth else could we do with our tears? They can tell a story when our laughter or suffering -or even just irritating allergies-dust -are too deep for words to express. So cry, Wayne. Cry when you feel like it because that's what tears are for.
And feet are made for dancing.
And mouths are made for smiles
And hearts are made your loving....
Oh wow. Thank you. I sometimes wonder myself. Have no choice. Can't retire till next year.