I am trying to learn how to manage all of this. We have good days when all is well and he is happy but it so quickly descends into unkind words and controlling behaviour. After all, as a wife of 54years I clearly have duties and no rights in his mind. Everything is his and everything I try to do to make our lives easier is blocked. It’s all very frustrating. I am learning to walk away and do something else and trying not to get to angry myself.
Respite care would be great but he has to be willing to go! Carers are wonderful but they have to be accepted. I am lucky, we have a lovely home in the countryside with fields and kind neighbours who understand the difficulty.
There is the frustration of getting old, hard to accept when you are 94 and as I reach 80 this year I’m no longer a spring chicken. I enjoy painting but everything is in heaps around the house and shed because no space is mine and the bedrooms aren’t suited. Another annoyance for my loved one.Our lovely children are abroad, two in New Zealand, two in USA with our grandchildren. Thank heavens they have been able to visit.
I do have support but he doesn’t like it. He talks of my being able to do what I want when he is gone but he is amazingly strong and fit for his age, walking independently, eating well, but not happy. He does not like me and thinks he can find a replacement. How sad for him, he has so much and it all becomes worthless. it’s a cruel and strange illness. I don’t mind forgetfulness but anger and unkindness are hard to deal with.
Respite care would be great but he has to be willing to go! Carers are wonderful but they have to be accepted. I am lucky, we have a lovely home in the countryside with fields and kind neighbours who understand the difficulty.
There is the frustration of getting old, hard to accept when you are 94 and as I reach 80 this year I’m no longer a spring chicken. I enjoy painting but everything is in heaps around the house and shed because no space is mine and the bedrooms aren’t suited. Another annoyance for my loved one.Our lovely children are abroad, two in New Zealand, two in USA with our grandchildren. Thank heavens they have been able to visit.
I do have support but he doesn’t like it. He talks of my being able to do what I want when he is gone but he is amazingly strong and fit for his age, walking independently, eating well, but not happy. He does not like me and thinks he can find a replacement. How sad for him, he has so much and it all becomes worthless. it’s a cruel and strange illness. I don’t mind forgetfulness but anger and unkindness are hard to deal with.